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- Pernicious Anaemia Society Conference October 2013
- Treating Pernicious Anaemia: Getting it Right | 2019 Conference
- Membership Terms and Conditions
- Conference 2019 Presentations
- Injectable Cobalamin Evaluation – The ICE Project – Rachael Barnes
- In Vitro Gastric Inflammation, B12 and Treatment – Tegwen Elliott
- My Story – Sophie Barry
- Our microbiome and its link with treatment for Pernicious Anaemia – Prof Hunter
- The Management of Pernicious Anaemia- a step in the right direction?
- Our microbiome and its link with treatment for Pernicious Anaemia Prof Warren
- PAS members’ Experiences of Self-Managing Pernicious Anaemia
- The Stigma of Living with an Invisible Condition
- Vitamin B12: Fact or Fiction? – Dr Hajo Auwerda
- Pernicious anaemia treatment during COVID-19
- Sitemap
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- Legacies
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- Pernicious Anaemia Personal Stories
- Folate, iron and vitamin B6
- PAS Meeting minutes and Reports
- Exploring Iron Deficiency in Pernicious Anaemia
- PA Research
- Pernicious Anaemia Webinars
- Iron Deficiency
- Pernicious Anaemia and other conditions
Posts
Blog
- One History of Pernicious Anaemia
- The Patient Experience in Diagnosis and Treatment of Autoimmune Gastritis and Pernicious Anaemia
- Only One Chance
- Bridging the Gap: B12 Deficiency from Research to Patient
- Pernicious Anaemia: A Misnomer? Exploring the Pros and Cons of a Name Change for an Overlooked Lifelong Condition
- How to judge the absorption of B12
- Imagine a World Without Research: A Glimpse into Stagnation and Darkness
- The Importance of Volunteering
- Hope and Psychology in Wellness – Pernicious Anaemia
- A Pharmacy Perspective – Empathy And Compassion
- The NHS Delivery Plan for Access to Primary Care
Conference
- 10th Anniversary Celebration Conference 2016
- Conference Tickets Now On Sale
- The Cobalamin (B12) Conference
- Conference Update
- What a Great Day
- The 10th Anniversary Conference Presentations Videos
- 11th International Conference on Homocysteine and One Carbon Metabolism
- International B12 Conference Programme Announced
- The Challenges of Vitamin B12 Deficiency Diagnosis Event
- PAS Conference 2019: Treating Pernicious Anaemia – Getting it Right
- PAS Conference Livestream
- Watch the 2019 PAS Conference Presentations
Events
- Martyn Hooper Speaking at Thyroid UK Conference
- Come Along to Our London Coffee Morning
- Thyroid UK Conference
- This Sunday Coffee Morning in Huddersfield
- Do you have a Question for NICE?
- Thames Path Challenge – show your support for Jessica
- B12 & Thyroid Conference in Loughborough 16 May 2015
- Birmingham Coffee Morning
- Coffee Morning, Birmingham—Sat, 30 May at 10:30am
- Annual General Meeting 2015
- International B12 Conference Programme Announced
- Let’s Get Together
- Report on the Conference in Denmark
Pernicious Anaemia
- Campaign Begins for Better Treatment
- Oral Supplements in Cornwall
- Diet and Pernicious Anaemia
- Second Meeting with the British National Formulary
- Neurological Consequences of Pernicious Anaemia – time to have the conversation
- Opportunity to raise awareness: new NICE guidelines
- Active B12 Test News
- NICE Request
- Pernicious Anaemia: The world’s forgotten disease
- Education and Pernicious Anaemia: Has your illness impacted on your studies?
- Laura Represents the PAS at the ‘Miss Yorkshire’ Competition
- Parliamentary Reception – We need your help!
- We’ve done it!
- Restrictive treatment changed
- Meeting with NICE on the Guideline
- Coming: Nationwide Political Campaign for the guideline on Pernicious Anaemia
- BSH guidance on B12 during Covid-19 changed
- Continuing: Treating Pernicious Anaemia during COVID-19
- Oral tablets to treat Pernicious Anaemia
- Guideline on Pernicious Anaemia commissioned by NICE
- Long COVID and Pernicious Anaemia
- Have Your Say On PA
- Have Your Say! Pick YOUR Top 10 PA Research Priorities
- It’s decision time!! The top 10 PA Research Priorities
- One History of Pernicious Anaemia
- Dr Joseph “Chandy” Kayyalackom-a Reflection
- PAS Statement on the Publication of the NICE Guideline
- Health Inequality in Long-term Conditions
Pernicious Anaemia Society
- 59 New Design Wristbands Sold
- Parliamentary Reception
- False Endorsement
- Oral Supplements in Cornwall
- Martyn’s Latest Blog
- Birmingham Coffee Morning
- Coffee Morning, Birmingham—Sat, 30 May at 10:30am
- New Ambassador for The Society
- House of Lords Presentation
- Annual General Meeting 2015
- Press Release – Society welcomes new GP App
- Additional Questions Developed for New Guidelines
- New Website
- Welcome to our New Website
- New Support Groups
- The New Website
- Oral Treatment
- Office closed for holidays
- Students and Pernicious Anaemia
- Office Flooded
- What a Great Day
- The 10th Anniversary Conference Presentations Videos
- Martyn Hooper, our Founder & Chair recognised in New Year’s Honours
- The New Documentary
- 11th International Conference on Homocysteine and One Carbon Metabolism
- We’ve been burgled again
- Here We Go Again!
- Thank You to our Regular Donators
- The Annual General Meeting
- Treatment Is For Life – Leaflet
- Report on the Conference in Denmark
- Important Step Closer to New Guideline
- The Meeting with NICE
- Neurological Consequences of Pernicious Anaemia – time to have the conversation
- Raising Awareness at the Cardiff Half-Marathon
- Chair’s Update – What’s been happening
- Our Helpline, new interviews & treatment development
- Covid-19: Letter to Health Ministers and injections being stopped
- Recent developments regarding injections being stopped
- Statement on the current Covid-19 pandemic and treatment being stopped
- The results are in! We have the Top 10 Research Priorities for Pernicious Anaemia!
Request
- Sign the petition
- Welsh Petition Committee Meets Tomorrow
- Petition Outcome
- Scottish Petition
- Can You Send this Letter to Your MP Before the end of January Please
- We Want Your Story
- Another Opportunity
- NICE RECRUITMENT
- Wanted – Male or Female 40-70 yrs of age
- Share your story and help us raise awareness!
- Autoimmune Diseases & Diet
- Help improve the diagnosis
- Education and Pernicious Anaemia: Has your illness impacted on your studies?
- National Newspaper Request
- What is it like to live and cope with pernicious anaemia: participants for research needed
- Parliamentary Reception – We need your help!
- The Pernicious Anaemia Society welcomes new neurological patient experience survey
Research
- Research Programme
- New Research Request
- Chairman’s Recent Blog
- A big step forward in research
- Another Research Proposal
- A new opportunity to participate in a research project
- New Research Project – Diet and Autoimmune Diseases
- Help improve the diagnosis
- What is it like to live and cope with pernicious anaemia: participants for research needed
- Surprise Findings by Research Team
- More good news! Another step forward in B12 research
- Exploring symptom perception in Pernicious Anaemia : Research participants needed
- Research follow-up: Last Samples Delivered
- Oral tablets to treat Pernicious Anaemia
- Have Your Say On PA
- Why, what, how: the JLA PA Priority Setting Partnership
- Have Your Say! Pick YOUR Top 10 PA Research Priorities
- It’s decision time!! The top 10 PA Research Priorities
- The results are in! We have the Top 10 Research Priorities for Pernicious Anaemia!
- Research priorities for B12 patients
- Low vitamin B12 associated with restless leg syndrome
Support
- Leicestershire Support Group
- Isle of Man Support Group
- Leicester/East of England Support Group Report
- New Support Group in Eastbourne
- Leicestershire/East Midland Pernicious Anaemia Support Group
- Gloucestershire Support Group
- South Wales Support Group First Meeting
- Support Group News
- Leicester Support Group Meeting
- Appeal Tribunal
- Our Member Support Groups
- Help grow our local support network
Articles
- Cobalamin News August 2007
- B12 and Good Gut Residents
- The Absorption of Vitamin B12 and its Interruption Revisited
- Should holoTC be the first line diagnostic procedure for assessment of vitamin B12 status?
- The Problems Diagnosing B12 Deficiency – the Patient Perspective
- Vitamin B12 and the colonic microflora
- Factsheet Still symptomatic after treatment
- Cobalamin News October 2007
- Pernicious Anaemia & Employment Issues
- Teacher/Lecturer Information Leaflet
- Subacute Combined Degeneration of the Spinal Cord Leaflet
- Vitamin B12 Deficiency in Pregnancy and Newborns Leaflet
- Juvenile Pernicious Anaemia Information for Parents
- Juvenile Pernicious Anaemia Information for Patients
- Pernicious Anaemia and Mental Health
- Summary of the survey results: Patient journeys: diagnosis and treatment of pernicious anaemia
- Cobalamin News April 2008
- Cobalamin News March 2009
- Cobalamin News May 2009
- Cobalamin News September 2009
- Cobalamin News November 2009
- Cobalamin News December 2009
- Cobalamin News February 2009
- Cobalamin News November 2010
- Cobalamin News May 2013
- Cobalamin News December 2013
- Cobalamin News April 2014
- Cobalamin News September 2014
- Cobalamin News January 2015 Annual Update
- Cobalamin News October 2015
- Cobalamin News May 2016
- Cobalamin News July 2016
- Cobalamin News October 2016
- Cobalamin News January 2017
- Cobalamin News May 2017
- Treatment is for life
- An Update for Medical Professionals: Diagnosis and Treatment
- Information for Clinicians – Doctors Briefing
- BSH Guidelines for the diagnosis and treatment of cobalamin and folate disorders
- Summary of the BSH Guidelines on Vitamin B12 and Folate
- Pernicious Anaemia Information Leaflet
- Symptoms Checklist
- Cobalamin News September 2017
- Cobalamin News December 2017
- Pernicious Anaemia: The world’s forgotten disease
- Methylmalonic acid (MMA)
- Cobalamin News March 2018
- Cobalamin News July 2018
- Cobalamin News October 2018
- Cobalamin News : Chairman’s Report of 2018
- Cobalamin News March 2019
- Cobalamin News July 2019
- Testing for Pernicious Anaemia
- Cobalamin News October 2019
- Cobalamin News Winter 19-20
- Cobalamin News Spring 2020
- Testing B12 during treatment
- Managing pernicious anaemia in the time of corononavirus
- Cobalamin News Summer 2020
- Cobalamin News Autumn 2020
- Cobalamin News Winter 2020
- Cobalamin News Spring 2021
- Cobalamin News Summer 2021
- Facts and Information sheet – Treatment of Pernicious Anaemia
- Treatment changed – What can you do?
- Cobalamin News Autumn 2021
- Pernicious Anaemia Priority Setting Partnership Final Report
- Cobalamin News Winter 2021
- Cobalamin News Spring 2022
- Personal Story: David Connell-Smith
- Personal Story: Amanda
- Personal Story: DC
- Cobalamin News Summer 2022
- Personal Story: Dr John Warren
- Personal Story: Carole Brown
- Personal Story: Jeannie Mackenzie
- Cobalamin News Autumn 2022
- Personal Story: Aileen Stoneham
- Pernicious Anaemia Society Seminar 2022
- Cobalamin News Winter 2022
- Personal Story: Bob Stark
- Cobalamin News Spring 2023
- Cobalamin News Summer 2023
- Help Sheet – re-testing of B12 during treatment
- Personal Story: Clive Parsons
- Cobalamin News Autumn 2023
- PAS Seminar 2023
- Helpsheet for Patient-GP Discussion
- Cobalamin News Winter 2023
- Cobalamin News Spring 2024
- NICE Guideline on B12 deficiency in over 16’s
- Personal Story: Åsa Molin
- Cobalamin News Summer 2024
- Personal Story: Sheila
- Cobalamin News Autumn 2024
- Personal Story: D. Rice
- Personal Story: Michael
- Personal Story: Megan
- Megaloblastic anaemia
- Personal Story: Eve
- Personal Story: Jimmy
- Cobalamin News Winter 2024
- I thought I had dementia
- Personal Story: Linda
- Guide for Patients Accessing your Health Records
- Cobalamin News Spring 2025