The Pernicious Anaemia Society
What We Do
We provide information, help and support to sufferers of Pernicious Anaemia (PA), including their families and friends and strive to improve current and future diagnosis and treatment of Pernicious Anaemia.
We provide Information Leaflets that explain in plain English what Pernicious Anaemia is and outlines some of the likely problems and consequences that the newly diagnosed patient can expect to encounter
We provide details of alternative treatments that are available – though we always advise that these alternative treatments should be discussed with the patient’s doctor beforehand
We lobby politicians to encourage them to call for a complete review of how Pernicious Anaemia in particular and B12 deficiency in general is diagnosed and treated
We organise local support groups that help alleviate the isolation often experienced by patients with Pernicious Anaemia
We work with medical professionals to raise awareness of the problems with late or wrong diagnosis and are currently campaigning for our members to be offered a choice of treatment methods based on the individual patient’s needs.
We recruit members to participate in medical and scientific research. We gather and analyse data and make this data available to medical professionals that will form the basis for research into the diagnosis and treatment of Pernicious Anaemia
We are focused on our service users. Our Ethos reflects this and we concentrate on the dignity of individuals who have the right to participate in the design and monitoring of their treatment.
Our Principals are based on respect for the right and dignity of our service users to choose their preferred treatment method that allows for a flexible and individually tailored regime that is focused on the individual needs of the patient in order that they can best manage their condition.