diagnosis

Research follow-up: Last Samples Delivered

14 Aug, 2018

Last Friday we delivered the 45 frozen Urine Samples to the laboratory in Milton Keynes as part of the research programme that is investigating why some patients need more frequent injections than others.

The urine samples, which were transported in dry ice, are from the same patients who provided faecal samples. The urine was frozen because we didn’t know whether we would need them analysed. But because there have been some exciting findings relating to the faecal samples the urine now has to be analysed to see if the samples also reveal the same surprising results.
All of the samples have been anonymised and have been subject to strict controls. Hopefully the results will confirm what the researchers already know. However, this won’t be any time soon as the tests will take quite a time to be completed.

The Research Team (from three different universities) want us to pass on their thanks to all those who participated in the project. Hopefully we shall have some more good news to pass on later on in the year.

Read more about this research programme:

Another step forward in B12 research

Surprise findings by research team

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5 Comments

  1. Dorothy Hull

    Only just heard about this – would have loved to have been involved. I have quarterly B12 injections which seem to have no effect whatsoever.Results of your tests will be very interesting

    Reply
  2. Patricia O'Connor

    Applying for my Irish cizenship for PA clinical trials next research. Thanks mom and dad from Tipperary Ireland p

    Reply
  3. Carole Rodgers

    I was diagnosed last year with PA I think I have been suffering a long time. The year before I was diagnosed, I was in a really bad place, thought I was dying ,palpitations constantly, anxiety ,made worse by worrying about palpitations, was put on prozac, and months later after still feeling unwell I read about b12 deficiency, my doc did blood tests and now I am on injections, and a few weeks before I am due next jab, I start to feel ill again ,what can I do ?

    Reply
  4. Jason Levett

    A couple of years on, since this development, is there by chance an update on the research and report?

    Reply
    • Petra

      Please see the video from our last conference: Our microbiome and its link with treatment for Pernicious Anaemia here: https://pernicious-anaemia-society.org/conference-2019-presentations/ The research is ongoing and has been extended and linked to other research. a new group of around 40 doctors and scientists has been formed concentrating on the biochemistry of B12 – especially the cellular take-up of the vitamin which would explain why patients need different treatment frequency. (the group is called CluB12UK)

      Reply

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