Pernicious Anaemia Society
We’ve done it!
Today (17th October) we received an email from the Director of Guidelines at the National Institute for Health and Care Excellence (NICE).... View Full Post
Raising Awareness at the Cardiff Half-Marathon
“We couldn’t believe how many people came up to us and told them that either they, or someone they knew had Pernicious Anaemia”. That’s what the four runners in this year’s Cardiff Half Marathon told us after they successfully completed the course.
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Parliamentary Reception – We need your help!
We are delighted to tell you that we have been successful in our application to host a Parliamentary Reception in the Jubilee Room of the... View Full Post
Appeal Tribunal
Personal Independence Payment (PIP) The Benefits System in the UK underwent a major change in recent years with the Personal Independence... View Full Post
Neurological Consequences of Pernicious Anaemia – time to have the conversation
We know that there are serious failures concerning the tests used to diagnose Pernicious Anaemia. And we also know that patients face a... View Full Post
The impact of Prescription Charges
Yesterday we attended our first meeting of the Prescription Charges Coalition at the headquarters of the Parkinson’s UK. The meeting was a... View Full Post
Second Meeting with the British National Formulary
Two years ago, we had a meeting with the head of the British National Formulary (BNF). The BNF is the booklet that is produced by the... View Full Post