The Society
We are an International Charity (charity reg. no. 1147839) that is based in Bridgend, South Wales. The society was founded in 2005 by the current Executive Chairman, Martyn Hooper. The original aim of the society was simply to provide an easy to understand explanation of Pernicious Anaemia to newly diagnosed patients – at the time there was no such information available. It quickly became obvious that there were serious issues with the way in which B12 Deficiency in general, and Pernicious Anaemia in particular, is diagnosed and treated. The society was entered onto the U.K’s Charity Commission in July 2006.
Our Mission
To secure a full and comprehensive review of the way in which Pernicious Anaemia is diagnosed and treated that will lead to more timely diagnoses and better treatment
Our Vision
A world that understands the nature and consequences of Pernicious Anaemia and where there is easily accessible information, advice and support for sufferers of Pernicious Anaemia and their families and friends.
The Society’s Trustees
Martyn Hooper MBE
Executive Chairman
Michael Stevenson
Secretary
David Connell-Smith
Treasurer
Elise Dyer
Online Fundraising and Events
Dr Lenira Semedo
Chartered Psychologist, Cardiff University
Dr. Anna Guildford
Scientific Consultant, EtAlia UK
Dr. Nicola Ward
Senior Lecturer, De Montfort University
Katy Simister
Theresa Taylor
Norman Thomas
Management Team
The society is run entirely by volunteers. The Trustees of the society meet every three months. Overall responsibility for the society rests with the trustees from various parts of the U.K. Day-to-day decisions are made by the Management Team.
Martyn Hooper MBE
Executive Chairman
Michael Stevenson
Secretary
David Connell-Smith
Treasurer
Petra Visser
Website & Membership Manager
Claire Doyle Ragin
Social Media Manager
Karyl Carter
Office & Support Group Manager
Our Aims
Our Values
Our Principals are based on respect for the right and dignity of our service users to choose their preferred treatment method that allows for a flexible and individually tailored regime that is focused on the individual needs of the patient in order that they can best manage their condition.