About the PAS

We are an International Charity (charity reg. no. 1147839) that is based in Bridgend, South Wales. The society was founded in 2005 by the current Executive Chairman, Martyn Hooper. The original aim of the society was simply to provide an easy to understand explanation of Pernicious Anaemia to newly diagnosed patients – at the time there was no such information available. It quickly became obvious that there were serious issues with the way in which B12 Deficiency in general, and Pernicious Anaemia in particular, is diagnosed and treated. The society was entered onto the U.K’s Charity Commission in July 2006.

Our Mission

To secure a full and comprehensive review of the way in which Pernicious Anaemia is diagnosed and treated that will lead to more timely diagnoses and better treatment

Our Vision

A world that understands the nature and consequences of Pernicious Anaemia and where there is easily accessible information, advice and support for sufferers of Pernicious Anaemia and their families and friends.

The Society’s Trustees

Martyn Hooper MBE

Martyn Hooper MBE

Executive Chairman

Stephen Ganter

Stephen Ganter

Vice-chairman

David Connell-Smith

David Connell-Smith

Treasurer

Michael Stevenson

Michael Stevenson

Secretary

Dr Lenira Semedo

Dr Lenira Semedo

Chartered Psychologist, Cardiff University

Dr. Anna Guildford

Dr. Anna Guildford

Scientific Consultant, EtAlia UK

Dr. Nicola Ward

Dr. Nicola Ward

Senior Lecturer, De Montfort University

Elise Dyer

Elise Dyer

Online Fundraising and Events

Theresa Taylor

Theresa Taylor

Norman Thomas

Norman Thomas

Nicola Allen

Nicola Allen

Katrina Burchell

Katrina Burchell

Management Team

The society is run entirely by volunteers. The Trustees of the society meet every three months. Overall responsibility for the society rests with the trustees from various parts of the U.K. Day-to-day decisions are made by the Management Team.

Martyn Hooper MBE

Martyn Hooper MBE

Executive Chairman

Karyl Carter

Karyl Carter

Office & Support Group Manager

Stephen Ganter

Stephen Ganter

Vice-chairman

Petra Visser

Petra Visser

Website & Membership Manager

David Connell-Smith

David Connell-Smith

Treasurer

Claire Doyle Ragin

Claire Doyle Ragin

Social Media Manager

Michael Stevenson

Michael Stevenson

Secretary

Our Aims

PAS
Promote and protect the physical and mental health of sufferers of Pernicious Anaemia through the provision of support, education and practical advice.
PAS
Advance the education of the general public in all areas relating to Pernicious Anaemia.
PAS
Promote and Participate in research into the causes and treatment of Pernicious Anaemia for the public benefit.

Our Values

We are focused on our service users. Our Ethos reflects this and we concentrate on the dignity of individuals who have the right to participate in the design and monitoring of their treatment.
Our Principals are based on respect for the right and dignity of our service users to choose their preferred treatment method that allows for a flexible and individually tailored regime that is focused on the individual needs of the patient in order that they can best manage their condition.

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