The world’s forgotten disease

Pernicious Anaemia: The world’s forgotten disease

12 Feb, 2018

Open Access Government publication

Our chairman, Martyn Hooper MBE, was invited to write an article about Pernicious Anaemia for the February edition of the quarterly Open Access Government publication.

“Open Access Government produces compelling and informative products for a wide audience. Our dedicated team have many years’ experience and are committed to delivering up-to-date analysis, news and exclusive features for a public and private sector readership.
Produced in a digital format, their quarterly Open Access Government publication provides a platform for policy makers, experts, and opinion leaders to highlight new projects, discuss and debate current challenges, and communicate instances of best practice.
The publication is digitally distributed to over 100,000 key people throughout Europe, the US and Canada within organisations such as local government, central government, healthcare organisations, research councils, academia and finance departments.”

The article will also be available in our Library of Leaflets and Articles. The full publication of the edition can be found here

Article Open-Access-Government-issue-17-Feb-2018-web

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6 Comments

  1. Debra

    This is wonderful news. It may be slow progress but it’s progress!
    More thorough investigation and more frequent injections would be most welcome

    Reply
    • Michelle

      Totally agree I’ve been struggling for 6 days now don’t get injection until in morning I’m exhausted can’t function sleeping dizzy breathless pins needles in hands on waking sometimes I even have difficulty getting in dr to receive my injection on time I feel I need it so much sooner than the nice guidelines of 12 weeks

      Reply
      • Susan

        I totally agree with that!! I was diagnosed in Dec. and feel some better but this is going to take forever!!!!

        Reply
  2. Anne Lindsay

    Anne 12th February 2018

    I agree with Debra. It is good news that at last there is the urge for more
    research on PA from a body such as NICE. A different approach to treatment would help e.g. use of patches. Thanks to Martyn Hooper for all
    the work he is doing to help us.

    Reply
  3. Verda Pritchard

    I live in Canada and now I buy and use (daily) Jamieson Fast Dissolving Strips. These are 1,000 mcg . This is after being scolded by a nasty nurse in my doctor’s office and years and years of B12 shots. I’ve been using these now for 3 months and feel great!

    Reply
  4. Suzanne

    My doctor verbally abused & swore at me before announcing to every person in surgery that I was never allowed to see him again & to take him off being my Dr all because I asked for more frequent shots as my paralysis,nerve damage etc is extremely severe.He called BS on all my symptoms & said they have nothing to do with PA.This is shocking treatment for a person who is supposed to care for people.He acted disgustingly & I am shattered & in need of a shot

    Reply

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