- A Member of the Pernicious Anaemia Society
- Be diagnosed with Pernicious Anaemia
- Be between the ages of 18 and 75
- Be English speaking
Receiving a diagnosis of pernicious anaemia: exploring experiences of relationships with health professionals
Ethics approval reference number: 9061
Although the study is centred in Cardiff, the interviews will be carried out via Skype. If you live near Cardiff and prefer to have a face to face interview that can also be arranged. Here’s what the research is about:
If you are interested in taking part in this study, would like more information or if you have any questions, please contact Heidi and Emily by email: pr*********@ou*****.com
4 Generations of my family have suffered with Vit B12 Defiency.I take care of myself by Everyother day injections of hydroxy cobalamin that I get sent to me from Germany. 3 Monthly injections offered by my GP would leave me half dead…
Oh dear I’m beginning to think I’m going to have the same problems
My GP at first prescribed one injection a month followed by one every 3 months without ever considering a loading dose !!!!
This was while my blood levels were on the floor !
Soooo ….I researched and found NICE and NHS guidelines say 3 x a week, especially for folk with a brain disease (that’s me)
The nurse said no way, it wasn’t enough and ordered more for me !
I hear the next step after ‘loading’ is once a month……”we don’t bother with blood tests to check the levels – we just keep you topped up once a month” Agggh …..so it’s the same ‘script for everybody then !!! Looks like I’ll be sourcing it myself ….and on here for advice?