As you are probably aware, the number of member support groups continues to grow. We already have 15 groups allover the country, but we would like to expand the network. We are aware that many of you appreciate how important these local groups are for providing the opportunity to speak to fellow sufferers which alleviates one of the worst aspects of Pernicious Anaemia – that feeling of isolation that patients experience. However, we also know that many of you that would like to start a local group lack the confidence to do so.
Support Group Coordinator
That’s why Karyl has now taken on the role of being the Support Group Coordinator and will dedicate her time to providing information and support for existing and emerging groups. We are busy producing a Do’s and Don’ts leaflet that will help to provide a framework within which the group will operate, and we are planning on holding a training session for existing and potential group leaders in the Spring as it’s important for us to protect the PAS brand and support our volunteers.
If you are interested in starting a support group, we will give you all the help we can. What’s involved in being a coordinator? You find a suitable venue, somewhere central to your area that’s easy to reach for members (we can help with any payment incurred for the first meeting) and select a date and time. We will help you by publicising the meeting on our website and social media and we’ll send an email to everyone in your area and let them know when the meeting is. You’ll get your own official PAS email address to register the rsvp’s and keep in touch with the group members and give information about the how and where of your meeting if needed. And on the day you welcome everyone and enjoy the meeting!
Hampshire & Leicestershire
Do you live in Hampshire or Leicestershire? Unfortunately our coordinators there are unable to continue due to personal circumstances but they are available to help you out with getting started, and there’s already a venue you can use. So if you would like to take over, you can get started straight away. It would be a shame if these groups would disappear, so if you’d like to take over, do let us know.
If you’re interested in starting a support group or if you would like to know more first then please send us an email!