NEWS & UPDATES

Meeting with NICE on the Guideline

Meeting with NICE on the Guideline

This week we met with a representative from the National Institute for Health and Care Excellence (NICE). The meeting was very productive and positive as we made the case for NICE to produce a Guideline on the Diagnosis and Maintenance of Pernicious Anaemia. Although...

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Help us help you!

Help us help you!

Next Thursday (6th June) we will be attending the Pierhead Building in Cardiff Bay to tell Welsh Assembly Members about the problems we face getting diagnosed and treated. The event is being sponsored by Huw Irranca-Davies AM who is one of the AM’s representing the...

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Wall Street Journal Identifies Problems with B12 Deficiency

Wall Street Journal Identifies Problems with B12 Deficiency

PHOTO: ABBIE TRAYLER-SMITH FOR THE WALL STREET JOURNAL On Tuesday 30th April, the prestigious Wall Street Journal published an article written by Dana Hawkins-Simons. Dana is most likely a sufferer of Pernicious Anaemia and, like so many of us, waited years for a...

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Congratulations ‘Team Elise’

Congratulations ‘Team Elise’

After nine months of training Elise Dyer has completed the London Marathon held in late April. Elise, who is a member of the society and who lives in southwest France contacted us just after the 2018 London marathon and asked if we had any runners for the 2019 event....

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The Challenges of Vitamin B12 Deficiency Diagnosis Event

The Challenges of Vitamin B12 Deficiency Diagnosis Event

Axis-Shield will be holding a free event on The Challenges of Vitamin B12 Deficiency Diagnosis at the Manchester Conference Centre on Wednesday 3rd April 2019 and would be delighted if you could join them. This event will be of particular interest to GP’s,...

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Restrictive treatment changed

Restrictive treatment changed

Yesterday we received confirmation from the British National Formulary (BNF) that they have changed their recommended treatment for Pernicious Anaemia without any neurological involvement. It’s only a small change but it’s a big step towards our final goal of getting...

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We’ve done it!

We’ve done it!

Today (17th October) we received an email from the Director of Guidelines at the National Institute for Health and Care Excellence (NICE). They have been formally requested by NHS England to produce a Guideline on the Diagnosis and Management of Pernicious Anaemia....

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Raising Awareness at the Cardiff Half-Marathon

Raising Awareness at the Cardiff Half-Marathon

“We couldn’t believe how many people came up to us and told them that either they, or someone they knew had Pernicious Anaemia”. That’s what the four runners in this year’s Cardiff Half Marathon told us after they successfully completed the course.

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