news and updates

Let’s Get Together

Let’s Get Together

We are starting to plan three Regional Get-Togethers that will take place in the Autumn. These informal gatherings will be held in London, Leeds and Edinburgh towards the end of the summer and will provide the opportunity for members to meet other members and exchange...

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New Research Project – Diet and Autoimmune Diseases

New Research Project – Diet and Autoimmune Diseases

You may remember that we reported an interesting research project that was in the very first stages of development. Well, we’ve just been told that the two researchers who we met with in London have been successful in their application for funding and the research...

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Thank You to our Regular Donators

Thank You to our Regular Donators

Last year we asked all of our members to consider making a small but regular monthly donation to the society in order to help us to meet the increasing demands made for our services. We want to say a great big Thank You to the members who responded to our request and...

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International B12 Conference Programme Announced

International B12 Conference Programme Announced

The full conference programme for the conference on One-Carbon Metabolism and Homocysteine has now been confirmed and the Chairman of the society, Martyn Hooper MBE, who has been invited to give the patient’s perspective on how the problems with the diagnosing and...

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A new opportunity to participate in a research project

A new opportunity to participate in a research project

Here’s a new opportunity to participate in a new research project that is looking at the experiences of receiving a diagnosis of Pernicious Anaemia. This new project will look at the experience of patients in getting diagnosed and treated, and how health professionals...

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Rhona’s Walking the West Highland Way

Rhona’s Walking the West Highland Way

Good Luck to Gold Member Rhona Bell who is walking the 154.5 km (96.0 mi) long West Highland Way – and she’s doing it for the Pernicious Anaemia Society. The long-distance route runs from Milngavie north of Glasgow to Fort William in the Scottish Highlands and Rhona...

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Here We Go Again!

Here We Go Again!

We received a telephone call yesterday from a very distraught member who was diagnosed with PA twenty-three years ago and has been having monthly injections since then. Yesterday she turned up for her monthly treatment only to be told that “new guidelines from NICE...

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Diet and Pernicious Anaemia

Diet and Pernicious Anaemia

At the recent meeting of the South Wales Support Group Selena Walker gave a presentation on how she manages her PA using diet alone. Upon request we have uploaded her powerpoint presentation for members to view. The link can be found on the Member Homepage after...

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We’ve been burgled again

We’ve been burgled again

For the second time in 7 months the offices of the society have been burgled. It happened sometime between 8:30am and 5:30pm last Friday (10th February). This time nothing was taken as we now lock away in a secure room any valuable equipment. Like last time, however,...

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