National Newspaper Request

We’ve been contacted by a journalist working for a National Newspaper in the UK who is looking for someone who had itchy skin as one of their symptoms of Pernicious Anaemia. Here’s what she says: “I am looking for a case study of a person with pernicious anaemia for...

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Pernicious Anaemia: The world’s forgotten disease

Open Access Government publication Our chairman, Martyn Hooper MBE, was invited to write an article about Pernicious Anaemia for the February edition of the quarterly Open Access Government publication. "Open Access Government produces compelling and...

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NICE Request

The Chairman of the Pernicious Anaemia Society has been contacted by the Director of Guidelines for the National Institute for Health and Care Excellent (NICE) and asked to complete a Template for a Topic Selection Pre-Referral Briefing. This is the first stage in...

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Help improve the diagnosis

We know that there are serious problems with the diagnosis of Vitamin B12 Deficiency in general and Pernicious Anaemia in particular. And the new Guidelines from the British Committee for Standards in Haematology acknowledge these shortcomings and point out that the...

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Appeal Tribunal

Personal Independence Payment (PIP) The Benefits System in the UK underwent a major change in recent years with the Personal Independence Payment (PIP) replacing the Disability Living Allowance. Those who used to receive, or still receive the Disability Living...

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Active B12 Test News

Yesterday we met with the Laboratory Director of one of the Regional General Hospitals in Wales. The meeting was relating to one of the research programmes currently being conducted that the society is involved in. At the meeting, it was revealed that the hospital...

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Research help needed: Impact of illness on life of young people

One of the most common assumptions by health professionals and the general public is that Pernicious Anaemia is mainly found in the elderly. We know, however, that children and young adults are just as susceptible to develop the disease and we also know that it can...

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Opportunity to raise awareness: new NICE guidelines

Guidelines on Psychosis and Schizophrenia We have been busy responding to requests from NICE to give our view on Guidelines being produced by them. Today we were pleased to be able to comment on the Guidelines on Psychosis and Schizophrenia. These Guidelines are not...

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