One of the most common assumptions by health professionals and the general public is that Pernicious Anaemia is mainly found in the elderly. We know, however, that children and young adults are just as susceptible to develop the disease and we also know that it can...
All UK members should have received the link to the survey that we are using to select appropriate participants for Professor Hunter's Research Project. If you would like to register for the programme please complete the survey which comprises of 21 short questions on...
We are about to start contacting all members who have registered to take part in the research programme that is investigating why some patients need more frequent treatment than the usually prescribed injection every twelve weeks in the UK. We have made slight...
The Central Commissioning Facility (part of the National Institute for Health Research) would like your views on how it plans to involve the public and patients in future health research. This is what they plan to do and they would value your views on it:...
The results of our Survey of Members' Experiences in getting diagnosed and treated has now been published by the British Journal of Nursing. The results show that 21% of members waited over two years for a correct diagnosis, 19% waited over five years and 14% waited...
The results of our Survey on members' experiences in getting diagnosed and treated has been accepted for publication by the British Journal of Nursing. The Survey was completed by over 1,300 members and the data has been 'cleaned' and analysed by an experienced...