A new study published in the Journal of Rare Diseases shines a much-needed light on the lived experience of Pernicious Anaemia (PA). For many in our community, the findings won't come as a surprise, but they provide vital academic validation for the daily struggles we...
This month’s blog is by Prof. Bruce Wolffenbuttel, a long time supporter of PAS and previous popular blog post contributor. At the end of the year and before PAS enters into its 20th year in existence, Bruce reflects on the persistent problem of outdated and...
You go to therapy because something feels wrong. You’re tired, but it’s more than that. You’re anxious, but you don’t know why. Some days you cry for no reason. Other days, nothing touches you at all. You think maybe you’re just burned out or overwhelmed. Maybe this...
The Silent Epidemic of Pernicious Anemia and the Medical Blind Spot That’s Costing Lives
I spent decades losing my health one misdiagnosis at a time.
This month’s blog post is from Wendy Aris host of the Dis a fi mi History Podcast which covers Caribbean History and researching family history. Wendy previously interviewed our CEO and you can find this and many other interesting topics on her podcast recordings on...
In the UK, one of the most common complaints we see from our members is about access to doctors and nurses in primary care. Not just for diagnosis but for their ongoing treatment with injections as well. The experience seems to be the same in the USA and in other...