In this month’s blog post our CEO, Katrina Burchell, looks at how NICE Guidelines should improve things for patients with a review of how NICE is supposed to work and a summary of what the Pernicious Anaemia Society and others have been doing since the publication of...
Raising awareness and facilitating communication and research Bringing about change is the focus of the Pernicious Anaemia Society. To do this, the PAS liaises with outside agencies of various kinds to Raise Awareness of the problems faced by patients in getting a...
Next Thursday (6th June) we will be attending the Pierhead Building in Cardiff Bay to tell Welsh Assembly Members about the problems we face getting diagnosed and treated. The event is being sponsored by Huw Irranca-Davies AM who is one of the AM’s representing the...
We are sponsoring 20 year-old Laura Smith from Grimsby who is hoping to be crowned the new ‘Miss Yorkshire‘ at the Double Tree Hilton in Sheffield on Saturday 17th June. If she is successful she will then be entering the Miss England competition. Laura is a member of...
We’ve been contacted by a journalist working for a National Newspaper in the UK who is looking for someone who had itchy skin as one of their symptoms of Pernicious Anaemia. Here’s what she says: “I am looking for a case study of a person with pernicious anaemia for...
The Chairman of the Pernicious Anaemia Society has been contacted by the Director of Guidelines for the National Institute for Health and Care Excellent (NICE) and asked to complete a Template for a Topic Selection Pre-Referral Briefing. This is the first stage in...