When we look at a full blood count, it is easy to view anaemia as a simple checkbox exercise—a minor inconvenience to be solved with a few standard tablets. But behind every laboratory report is a human reality.
This month’s blog post comes from our Trustee and USA based support group co-ordinator Julie Wichlin. Julie is actively involved in lobbying for improvements in raising awareness, education and better diagnosis and treatment of Pernicious Anaemia and publishes the...
Image from Jessica Brady CEDAR TrustThis blog post highlights a tool which people based in England who are struggling for a diagnosis with their GP can consider raising as part of a constructive, shared patient-doctor decision making discussion. We hear from many via...
In March 2025 it will be a year since the Nice Guideline on B12 Deficiency in over 16s was published. It seems timely to think again about why this was needed, what it says and when and how it applies.
Raising awareness and facilitating communication and research Bringing about change is the focus of the Pernicious Anaemia Society. To do this, the PAS liaises with outside agencies of various kinds to Raise Awareness of the problems faced by patients in getting a...
Next Thursday (6th June) we will be attending the Pierhead Building in Cardiff Bay to tell Welsh Assembly Members about the problems we face getting diagnosed and treated. The event is being sponsored by Huw Irranca-Davies AM who is one of the AM’s representing the...