Let’s Get Together

Apr 19, 2017 | Events, Request

We are starting to plan three Regional Get-Togethers that will take place in the Autumn. These informal gatherings will be held in London,... View Full Post

A new opportunity to participate in a research project

Apr 4, 2017 | Request, Research

Here’s a new opportunity to participate in a new research project that is looking at the experiences of receiving a diagnosis of... View Full Post

Autoimmune Diseases & Diet

Feb 2, 2017 | Request

We’ve been contacted by a newly formed research team who are investigating whether changes to diet can be used to alleviate the symptoms... View Full Post

Share your story and help us raise awareness!

Jul 30, 2016 | Request

We are looking for members of the Pernicious Anaemia Society who cannot manage on the twelve weekly treatment regime that is used to treat... View Full Post

Wanted – Male or Female 40-70 yrs of age

Feb 2, 2016 | Request

Here’s a request from a Journalist: “Do you have a man or woman aged 40-70 who will tell me their story in detail, with a... View Full Post

NICE RECRUITMENT

Dec 9, 2015 | Request

We’ve received a couple of requests from the National Institute for Care and Health Excellence for applicants to join various... View Full Post

Another Opportunity

Dec 8, 2015 | Request

Here’s another Request from NICE: Dear Colleague RE: NICE committee to develop guidelines on the assessment, diagnosis and referral... View Full Post

We Want Your Story

Nov 25, 2015 | Request

If you have an interesting story about the problems you faced in getting an accurate diagnosis and adequate treatment and are prepared to... View Full Post

Can You Send this Letter to Your MP Before the end of January Please

Dec 30, 2014 | Request

A lot of the time we hear you ask… “What can I do to change things?” Well this is it… Send this Letter and Help... View Full Post