category archive

Let’s Get Together

We are starting to plan three Regional Get-Togethers that will take place in the Autumn. These informal gatherings will be held in London, Leeds and Edinburgh towards the end of the summer and will provide the opportunity for members to meet other members and exchange...

Autoimmune Diseases & Diet

We’ve been contacted by a newly formed research team who are investigating whether changes to diet can be used to alleviate the symptoms of auto-immune diseases. The research team want to know if patients diagnosed with Pernicious Anaemia have any anecdotal evidence...

Share your story and help us raise awareness!

We are looking for members of the Pernicious Anaemia Society who cannot manage on the twelve weekly treatment regime that is used to treat PA in the UK. If you live in the south of England, especially in Hampshire, Dorset or the Isle of Wight and would be willing to...

Wanted – Male or Female 40-70 yrs of age

Here’s a request from a Journalist: “Do you have a man or woman aged 40-70 who will tell me their story in detail, with a positive outcome (they now have the treatment they need) and who can also supply a good head and shoulders pic for use in the...

NICE RECRUITMENT

We’ve received a couple of requests from the National Institute for Care and Health Excellence for applicants to join various committees.  Please see below: Dear Colleague,   NICE Public Health Advisory Committee – recruitment of ‘core’ community member   We are...

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