documentary

The New Documentary

23 Jan, 2017

We’ve started to write the new documentary that will raise awareness of the problems with the Diagnosis and Treatment of Pernicious Anaemia. It was in 2011 that our first documentary, ‘Living with the Fog’ was produced and although it was well received we didn’t have the evidence at that time that there are serious problems that patients face in getting a diagnosis and receiving adequate treatment that we have access to now. Now, the amount of evidence relating to the disease means that this new documentary will be much more than just anecdotal stories, it will feature interviews with medical professionals and other scientists that will show that the way in which the condition is diagnosed and treated needs to be thoroughly reviewed. And we’ll be interviewing members who have interesting stories to tell (more about that later).
And, in addition to looking at the problems relating to diagnosing and treating the disease, there will also be a section that reports on how Pernicious Anaemia impacts on the everyday lives of sufferers. We’ve been busy working with Psychologists and other interested professionals to investigate just how PA affects patients Family Life, Social Life, Working Life, and Education. In addition, it will also report on how the Healthcare systems around the world are also being affected, not only in financial terms due to misdiagnosis, but also in doctors not ‘looking’ for the disease.
Now, why are we telling you this? Because we want suggestions for the title of the film.
It is going to be a well-balanced and serious investigation and so ‘sensational’ titles would not be suitable. Nor will the film be an angry investigation; it has to be balanced otherwise it just becomes a polemic which will not be treated as a serious piece of work. It will be a calm investigation that relates facts as they are in a non-sensational way. And we need a title that reflects this.
Please let us have your suggestions by writing a comment below this post. If we choose the title from one of the suggestions the winning entry will get a signed copy of Martyn Hooper’s latest book and will be invited to the premiere of the film.
Please remember, no sensationalism!
Best of luck.

37 Comments

  1. Amanda Wilson

    Seeing through the fog

    Reply
  2. Frank Hollis

    Purple Haze

    Reply
  3. Jennifer Warr

    The Trouble With Cobalamin

    A Patient’s Perspective on B12

    Reply
  4. Jennifer Warr

    A Pernicious Problem

    Reply
  5. Queen Btwelve

    Reflection of my Shadow

    Patient experience before during and after diagnosis . Feelings that come before reflection . Patient experience under used tool xx Goodluck with documentary

    Reply
  6. Maureen Natusch

    Just like a game of Blind Man’s Buff without the fun

    Reply
  7. Ellie feingold

    Per what ??
    Why had I not heard of pernicious anemia before diagnosis ?

    Reply
  8. Sarah Ferguson

    A day and life living with Pernicious Anaemia – the silent but progressive illness….

    Reply
  9. Bev Firth

    The unspoken truth

    Reply
  10. Jenny usher

    The Deadly deficiency

    Reply
  11. Doug

    The God Vitamin

    and the forgotten disease

    Reply
  12. Charlene morrow

    The forgotten people inside the mind of pernicious anaemia sufferers

    Reply
  13. Jill

    A New Approach To Diagnosing And Treating Pernicious Anemia

    Reply
  14. Helen Bates

    Intrinsically Flawed

    Reply
    • Mary Ann Mutrux

      Disguised Diagnoses

      Reply
  15. Helen Bated

    Or, a play on words, ‘Intrinsically Floored’

    Reply
  16. Karyl Carter

    Pernicious Anaemia: The Facts YOU need to know

    Reply
  17. Amanda Davies-Day

    The missing pieces – vitamin deficiencies & P.A. uncovered

    Reply
  18. Nicole

    Finding balance.

    Reply
  19. Lisa

    Pernicious,Falling on deaf ears.

    Reply
  20. Melanie Wilson

    The daily struggles and tales of pernicious anaemia!

    Reply
  21. Stephen Patterson

    Everybody’s story

    Reply
  22. Maggie

    B12 Aware:
    Expelling the myths around pernicious anaemia

    Reply
  23. Lisahelen

    Just One of Many
    We need a whole host of vitamins and minerals to make our bodies function properly.
    There are many symptoms, not just one or two.
    many go undiagnosed, misdiagnosed or under treated.
    Are you one of the many?
    A sufferer of B12 deficiency

    Reply
  24. Lynn Holloway

    Pernicious Anaemia: The Silent Killer With A Costly Sigh

    Reply
  25. Sue KINCAID

    I second the above suggestions:

    1) A Pernicious Problem [Jennifer Warr]
    2) The Deadly Deficiency [Jenny Usher]
    3) B12 Aware – Intrinsically Flawed [Maggie/Helen Bates combination]

    Reply
  26. Barry Smith

    B12 No profit. No Research, No treatment – WHY ?

    Reply
  27. Maggie

    B12 matters:
    Exploring the facts around pernicious anaemia

    Reply
  28. brenda wilson

    B12-Be aware
    or
    Misdiagnosed? #Perniscious anaemia

    Reply
  29. Gary O'Brien

    Knowing Pernicious Anemia

    Reply
  30. Rachele Graves

    Pernicious Anemia’s – RED MIST (Realizing
    Everyone’s
    Different

    Mis(and under) diagnosed
    Indiviual’s
    Silent
    Torture

    Reply
  31. Anne Pinner

    B12 – Don’t ignore it because it won’t go away

    Reply
  32. Sarah Tilley

    Life Blood – the debilitating effects of Pernicious Anaemia

    Reply
  33. Caroline White

    You can ‘Be One Two’ or ‘You can Be One Two as well’

    Reply
  34. Karishma

    “The Silent Killer: Pernicious Anaemia”

    Also, I’d like to know when this documentary will be released.

    Reply
  35. Gavin Robinson

    To B12 or not to B12, that is the question.

    Reply
  36. Lenore McGrath

    PA and me

    Reply

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