Yesterday we received confirmation from the British National Formulary (BNF) that they have changed their recommended treatment for Pernicious Anaemia without any neurological involvement. It’s only a small change but it’s a big step towards our final goal of getting patients treated according to their individual needs.
We know that most of our members struggle with the UK’s three-monthly treatment regimen and most will need an injection sooner. The new treatment regimen has been changed from ‘every three months’ to ‘every 2-3 months’.

Dose amendment

This is what they say:
“We have reviewed the dose of Hydroxocobalamin for the treatment of Pernicious anaemia and other macrocytic anaemias without neurological involvement. As of September this year we have amended the dose to the following;

BY INTRAMUSCULAR INJECTION
Adult: Initially 1 mg 3 times a week for 2 weeks, then 1 mg every 2-3 months”.

And they say more:

“As you have highlighted this previously was 1 mg every three months which we understand was restrictive to treatment”.

Treatment based on individual needs

“Although this is only a small change it does lead the way to patients getting treatment according to their individual needs” says PA Society Chairman Martyn Hooper MBE.
“We will continue to campaign for treatments based on the individual needs of the patient but this small but significant change means that we are being listened to and we can bring about change by producing relevant evidence” he says.

So, if you are struggling to manage in that third month please point your GP towards the new guidance in the BNF.

Our thanks to Dr. Nicola Ward for her work in producing the Review which was well received by the BNF.

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