Our Helpline, new interviews & treatment development

24 Feb, 2020

Pernicious Anaemia Society

Dedicated Helpline Telephone Number

My thanks to those who have volunteered to help man the telephone helpline service that we offer to our members. We receive a lot of calls from non-members asking for help and advice and, although we do our best to help these callers, it does mean that often members are unable to access the service. To help and support our members better, we have introduced a dedicated telephone number that only members will be able to access. This number will be visible to our members when they log in on the website on our Members’ homepage, our contact page and in the menu at the top of the website.


If you would like to help man the helpline, and are able to undertake a two and a half hour training course to give you the necessary knowledge and skills to answer calls with confidence please get in touch with the office by phone or email so that we can make the necessary arrangements.

New Treatment Development

We’ve been contacted by a researcher from the Department of Biological and Life Sciences of a large UK University asking if we would be interested in acting as an adviser to a project that is looking to develop a new delivery method for B12 injections. Obviously, this is all confidential at the moment but we have to say that this new innovation has the capacity to really change the way in which we, as patients, are treated, and has the real potential to improve patients’ lives and those of their family and friends. This is in the initial development stage and we will be travelling to the University for a morning meeting in the next few weeks to explore how we, as a society, can get involved. It will probably involve recruiting participants for trials – though that won’t be for a year or so.

Conference presentations & interviews

In case you missed our conference last December and haven’t watched the videos yet, you can watch all the conference presentations of the day here. We have now added the post-presentation video interviews with the speakers from the December 2019 conference to our website as well so be sure to check those out. You can read more about the conference and our speakers here. PAS Members can just log in and watch the Conference presentations and the interviews here.

Coming soon: Living with Pernicious Anaemia Documentary

We know it’s been a long time since we interviewed members for our upcoming documentary ‘Living with Pernicious Anaemia’ but we are happy to tell you that editing the captured interviews has now begun and the documentary will be available hopefully by the end of March. If you are interested in being filmed and telling how Pernicious Anaemia has impacted on your everyday life please get in touch. Please include a telephone number and let us know a convenient time that we can call you.

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Recent developments regarding injections being stopped

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  1. Carey williams

    How do you join this group please

  2. Mary Epke

    Thank you Martyn for all you do for us . I cannot imagine what my life would be like if I hadn’t found the PAS , which you founded . Also many thanks to your dedicated team .

  3. Nigel Timms

    Hello, I have just become a member. Not sure if this is the correct place to ask questions. I have not been diagnosed but I have 27 of the symptoms without having below normal blood results. My GP wrote about me to the haematology dept but they said my B12 levels are ok and suggest Neurology referral. My sister has PA. I have quoted all the info I have gathered from this website and explained that my diet is high in B12 so it will be in my blood but not being used… Help please


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