Pernicious Anaemia Society

We are changing the way Pernicious Anaemia is diagnosed and treated by:

providing information to patients and health professionalsproviding help and support to patients and their familiesengaging in research with the health research communitylobbying decision makersworking hard to change the way in which PA is diagnosedworking hard to change the way PA is treated

Pernicious Anaemia

What is Pernicious Anaemia and what does it do?

The Chair's Blog

Read about Martyn Hooper’s experiences as chair of the Society

Healthcare Professionals

Information to help you and your patients

Opportunity to raise awareness: new NICE guidelines

Guidelines on Psychosis and Schizophrenia We have been busy responding to requests from NICE to give our view on Guidelines being produced by them. Today we were...
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Leicester Support Group Meeting

Over the years, we have established contact with other charities that are patient support groups. We share information about contacts and strategies and generally...
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Neurological Consequences of Pernicious Anaemia – time to have the conversation

We know that there are serious failures concerning the tests used to diagnose Pernicious Anaemia. And we also know that patients face a long journey before they are...
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Opportunity to raise awareness: new NICE guidelines

Guidelines on Psychosis and Schizophrenia We have been busy responding to requests from...
View Full Post

Leicester Support Group Meeting

Over the years, we have established contact with other charities that are patient...
View Full Post

Neurological Consequences of Pernicious Anaemia – time to have the conversation

We know that there are serious failures concerning the tests used to diagnose Pernicious...
View Full Post

Become a Member the Pernicious Anaemia Society

With your help we can continue to do our valuable work, supporting those that need it and campaigning to secure future improvements in detection and treatment of this illness. The more members we have the bigger our voice will be in getting the way in which Pernicious Anaemia is diagnosed and treated thoroughly reviewed. Join us and help us bring about this much needed review.

What are the Benefits?

Your membership fee or donations go towards the running of society, but also help us to fund research projects, awareness campaigns and many other activities.

Access to detailed information about Pernicious Anaemia
Access to our Helpline
Access to a Local Support Group
Attend our bi-annual conference at a reduced fee

Receive our quarterly newsletter
Opportunity to participate in research programmes
Letter Writing Service
Access to our Advocacy Services

Get Involved

Fundraise for us

Raise much needed funds for the society by holding an event or get yourself sponsored.

Member Support Groups

Join one of the groups or start your own!

Volunteer

Help out! Let us know what you can or want to do to help us

Our Mission

To secure a full and comprehensive review of the way in which Pernicious Anaemia is diagnosed and treated
that will lead to more timely diagnoses and better treatment

More About Us

Did you know ?

%

Of patients waited 5 years or more for diagnosis

%

Of patients were initially misdiagnosed

%

Of patients are unhappy with their treatment

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