PERNICIOUS ANAEMIA SOCIETY
Help us improve the way Pernicious Anaemia is diagnosed and treated
Pernicious Anaemia
Pernicious Anaemia Society
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The NHS Delivery Plan for Access to Primary Care
In the UK, one of the most common complaints we see from our members is about access to doctors and nurses in primary care. Not just for diagnosis but for their ongoing treatment...
The NICE B12 guideline – has anything changed?
In this month’s blog post our CEO, Katrina Burchell, looks at how NICE Guidelines should improve things for patients with a review of how NICE is supposed to work and a summary...
Health Inequality in Long-term Conditions
This months’ blog post from CEO Katrina Burchell discussed health inequalities from the perspective of the condition. The diagnosis and treatment of people with Pernicious...
B Vitamins: The Essential Crew of Superheroes Keeping Your Body Running Smoothly
I was talking to someone in the medical field the other day about vitamin B12 and they commented: “Oh yes! B vitamins they are all the same aren’t they and you get them in your...
A Pharmacy Perspective – Empathy And Compassion
This month’s blog post is a contribution from Dr Nicola Ward, Associate Professor in Pharmacy at Leicester School of Pharmacy, De Montfort University. Nicola is a long-time ally...
Hope and Psychology in Wellness – Pernicious Anaemia
This month’s blog post is written by Dr Heidi Seage. Principal Lecturer in Health Psychology and Programme director MSc in Health Psychology at Cardiff School of Sport and Health...
The Importance of Volunteering
This month’s blog is about Volunteering as we celebrate 40 years of Volunteering week in the first week of June 2024. The Pernicious Anaemia Society is run by a small team of...
Imagine a World Without Research: A Glimpse into Stagnation and Darkness
Research isn’t only about grand inventions and distant futures. It’s about improving lives today. From personalised medicine developed to tailor treatments to the individual,
How to judge the absorption of B12
This month’s blog post is about the Schilling Test. The Pernicious Anaemia Society frequently gets questions about this from our members and many hark back to 'the good old days...
Did you know ?
%
Of patients waited 5 years or more for diagnosis
%
Of patients were initially misdiagnosed
%
Of patients are unhappy with their treatment
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Member Support Groups
Come and join us, and other other members of the society to share your experience of living with Pernicious Anaemia in a supportive and friendly environment.
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Become a Member of the Pernicious Anaemia Society
With your help we can continue to do our valuable work, supporting those that need it and campaigning to secure future improvements in detection and treatment of this illness. The more members we have the bigger our voice will be in getting the way in which Pernicious Anaemia is diagnosed and treated thoroughly reviewed. Join us and help us bring about this much needed review. Your membership fee or donations go towards the running of society, but also help us to fund research projects, awareness campaigns and many other activities.
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FAQ
What's the difference between B12 Deficiency and Pernicious Anaemia ?
Pernicious Anaemia is caused by either the patient not producing Intrinsic Factor that is needed to bind with vitamin B12 from food before it enters the blood stream or the Intrinsic Factor is being produced but is then destroyed by antibodies to the Intrinsic Factor – auto-immune Pernicious Anaemia. Because the patient is either not producing Intrinsic Factor or is destroying the Intrinsic Factor that has been produced the B12 cannot be absorbed from food.
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How is Pernicious Anemia diagnosed ?
If the test is positive, then it is 95% certain that the patient will have Pernicious Anaemia. However, it will identify only 50% – 70% of patients with the antibodies. So, if you test positive for the antibody you will almost certainly have Pernicious Anaemia. But is it is negative it does NOT rule our Pernicious Anaemia.
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How is Pernicious Anaemia treated ?
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What are the symptoms of Pernicious Anaemia ?
Our Mission
To secure a full and comprehensive review of the way in which Pernicious Anaemia is diagnosed and treated that will lead to more timely diagnoses and better treatment