Pernicious Anaemia Society

We are changing the way Pernicious Anaemia is diagnosed and treated by:

providing information to patients and health professionalsproviding help and support to patients and their familiesengaging in research with the health research communitylobbying decision makersworking hard to change the way in which PA is diagnosedworking hard to change the way PA is treated

Pernicious Anaemia

What is Pernicious Anaemia and what does it do?

The Chair's Blog

Read about Martyn Hooper’s experiences as chair of the Society

Healthcare Professionals

Information to help you and your patients

Neurological Consequences of Pernicious Anaemia – time to have the conversation

We know that there are serious failures concerning the tests used to diagnose Pernicious Anaemia. And we also know that patients face a long journey before they are...
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The impact of Prescription Charges

Yesterday we attended our first meeting of the Prescription Charges Coalition at the headquarters of the Parkinson’s UK. The meeting was a real insight into how the...
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Second Meeting with the British National Formulary

Two years ago, we had a meeting with the head of the British National Formulary (BNF). The BNF is the booklet that is produced by the Royal Pharmaceutical Society and...
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Neurological Consequences of Pernicious Anaemia – time to have the conversation

We know that there are serious failures concerning the tests used to diagnose Pernicious...
View Full Post

The impact of Prescription Charges

Yesterday we attended our first meeting of the Prescription Charges Coalition at the...
View Full Post

Second Meeting with the British National Formulary

Two years ago, we had a meeting with the head of the British National Formulary (BNF)....
View Full Post

Become a Member the Pernicious Anaemia Society

With your help we can continue to do our valuable work, supporting those that need it and campaigning to secure future improvements in detection and treatment of this illness. The more members we have the bigger our voice will be in getting the way in which Pernicious Anaemia is diagnosed and treated thoroughly reviewed. Join us and help us bring about this much needed review.

What are the Benefits?

Your membership fee or donations go towards the running of society, but also help us to fund research projects, awareness campaigns and many other activities.

Access to detailed information about Pernicious Anaemia
Access to our Helpline
Access to a Local Support Group
Attend our bi-annual conference at a reduced fee

Receive our quarterly newsletter
Opportunity to participate in research programmes
Letter Writing Service
Access to our Advocacy Services

Get Involved

Fundraise for us

Raise much needed funds for the society by holding an event or get yourself sponsored.

Member Support Groups

Join one of the groups or start your own!

Volunteer

Help out! Let us know what you can or want to do to help us

Our Mission

To secure a full and comprehensive review of the way in which Pernicious Anaemia is diagnosed and treated
that will lead to more timely diagnoses and better treatment

More About Us

Did you know ?

%

Of patients waited 5 years or more for diagnosis

%

Of patients were initially misdiagnosed

%

Of patients are unhappy with their treatment

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