Participate in a new research project that is looking at the experiences of receiving a diagnosis of Pernicious Anaemia
We recently let you know that we would be having a meeting with the Director of Guidelines at the National Institute of Health and Care Excellence. The meeting lasted 45 minutes and it was reassuring to know that the Institute in general, and the Director and his...
Gold Member Rhona Bell has successfully completed the 96-mile West Highland Way walking route – and she raised £675 for the Pernicious Anaemia Society. Rhona says, “I love the outdoors and have wanted to walk the West Highland Way since I was a teenager. When, out of...
After nearly four years of lobbying we have received an invitation to meet with Prof. Mark Baker, the Director of the Centre for Guidelines (CfG) at the National Institute for Health and Care Excellence (NICE). This invitation follows on from a request for NICE to...
The 11th International Conference on Homocysteine and One Carbon Metabolism that we were invited to speak at has now closed. See also the earlier news post about the conference here. The event, held over five days in Aarhus, Denmark, attracted over 200 delegates from...
A new leaflet relating to the Treatment of Pernicious Anaemia is now available in the Library section of the website. It has been written for members to address two problems that we are dealing with on a daily basis. Firstly, it addresses the dangerous and all too...
The Pernicious Anaemia Society
Level 4, Brackla House
Brackla Street, Bridgend
CF31 1BZ U.K.
+44 (0)1656 769 717
Did you know ?
Of patients waited 5 years or more for diagnosis
Of patients were initially misdiagnosed