Pernicious Anaemia Society

We are changing the way Pernicious Anaemia is diagnosed and treated by:

providing information to patients and health professionalsproviding help and support to patients and their familiesengaging in research with the health research communitylobbying decision makers working hard to change the way in which PA is diagnosed working hard to change the way PA is treated

Pernicious Anaemia

What is Pernicious Anaemia and what does it do?

The Chair's Blog

Read about Martyn Hooper’s experiences as chair of the Society

Healthcare Professionals

Information to help you and your patients

PAS Conference 2019: Treating Pernicious Anaemia – Getting it Right

The most common complaint received by the Pernicious Anaemia Society relates to the treatment of the disease. It is time for the ‘one-size-fits-all’ treatment to be reappraised. This PAS conference will highlight the Good, Poor and Unacceptable Treatment...

Meeting with NICE on the Guideline

This week we met with a representative from the National Institute for Health and Care Excellence (NICE). The meeting was very productive and positive as we made the case for NICE to produce a Guideline on the Diagnosis and Maintenance of Pernicious Anaemia. Although...

Help us help you!

Next Thursday (6th June) we will be attending the Pierhead Building in Cardiff Bay to tell Welsh Assembly Members about the problems we face getting diagnosed and treated. The event is being sponsored by Huw Irranca-Davies AM who is one of the AM’s representing the...

Our Mission

To secure a full and comprehensive review of the way in which Pernicious Anaemia is diagnosed and treated that will lead to more timely diagnoses and better treatment
Get Involved

Support the PAS

Give yourself the gift of giving and make a difference for everyone with Pernicious Anaemia.

Member Support Groups

Do come along and join us, and other other members of the society for a chance to share your experience of living with Pernicious Anaemia in a supportive and friendly environment.

No group in your area? Start your own!

PAS Just Giving

Fundraise for us

Raise much needed funds for the society by holding an event or get yourself sponsored.
Send e-cards

Send e-cards and donate

Help our charity in lieu of cards! Send festive e-cards and donate the equivalent to the society.
PAS Volunteer

Volunteer

Help out! Let us know what you can or want to do to help us
Find Out More
Did you know ?

%

Of patients waited 5 years or more for diagnosis

%

Of patients were initially misdiagnosed

%

Of patients are unhappy with their treatment

Upcoming Events

Become a Member of the Pernicious Anaemia Society

With your help we can continue to do our valuable work, supporting those that need it and campaigning to secure future improvements in detection and treatment of this illness. The more members we have the bigger our voice will be in getting the way in which Pernicious Anaemia is diagnosed and treated thoroughly reviewed. Join us and help us bring about this much needed review. Your membership fee or donations go towards the running of society, but also help us to fund research projects, awareness campaigns and many other activities.

Our Member Benefits
  • Access to detailed information about Pernicious Anaemia
  • Access to our Helpline
  • Attend our bi-annual conference at a reduced fee
  • Access to a Local Support Group
  • Receive our quarterly newsletter
  • Opportunity to participate in research programmes
  • Letter Writing Service
  • Access to our Advocacy Services
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