PERNICIOUS ANAEMIA SOCIETY
Changing the way Pernicious Anaemia is diagnosed and treated
Our guest blogger this month explores the important topic of diagnosis and treatment through patient experience. This is particularly relevant today as it is increasingly...
Following the Pernicious Anaemia James Lind Alliance Priority Setting Partnership (PSP) workshops, we now have our Top 10 Research Priorities; questions that patients, clinicians...
After many months of work, the Pernicious Anaemia JLA PSP has reached the most important point in the partnership to date – the workshops. The aim of the workshops is for the...
We need your help to shape the future of Pernicious Anaemia research Last spring, we launched a survey where we asked you to tell us what questions relating to Pernicious Anaemia...
The James Lind Alliance Pernicious Anaemia Priority Setting Partnership, Steering Group and the survey - What's it all about? In recent weeks we’ve been asking you to complete...
Did you know ?
Of patients waited 5 years or more for diagnosis
Of patients were initially misdiagnosed
Of patients are unhappy with their treatment
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Become a Member of the Pernicious Anaemia Society
With your help we can continue to do our valuable work, supporting those that need it and campaigning to secure future improvements in detection and treatment of this illness. The more members we have the bigger our voice will be in getting the way in which Pernicious Anaemia is diagnosed and treated thoroughly reviewed. Join us and help us bring about this much needed review. Your membership fee or donations go towards the running of society, but also help us to fund research projects, awareness campaigns and many other activities.
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What's the difference between B12 Deficiency and Pernicious Anaemia ?
Pernicious Anaemia is caused by either the patient not producing Intrinsic Factor that is needed to bind with vitamin B12 from food before it enters the blood stream or the Intrinsic Factor is being produced but is then destroyed by antibodies to the Intrinsic Factor – auto-immune Pernicious Anaemia. Because the patient is either not producing Intrinsic Factor or is destroying the Intrinsic Factor that has been produced the B12 cannot be absorbed from food.
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How is Pernicious Anemia diagnosed ?
If the test is positive, then it is 95% certain that the patient will have Pernicious Anaemia. However, it will identify only 50% – 70% of patients with the antibodies. So, if you test positive for the antibody you will almost certainly have Pernicious Anaemia. But is it is negative it does NOT rule our Pernicious Anaemia.
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How is Pernicious Anaemia treated ?
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What are the symptoms of Pernicious Anaemia ?
To secure a full and comprehensive review of the way in which Pernicious Anaemia is diagnosed and treated that will lead to more timely diagnoses and better treatment