Pernicious Anaemia Society

“My GP had stopped my B12 injections and after an appointment would not agree to restarting them. The support and advise from making contact with the society was invaluable. It was still a fight and letters sent to the practice from myself and the society were not responded to. However, on collecting a repeat prescription for other medication it also contained an ampoule of B12. As I am a nurse I am able to injected myself and so far the prescriptions have continued. So I can only presume that the GP had “given in”! So thanks to everyone, without your help I dread to think what state I would be in.”

Pam Brown

“In 2012-13 the PAS saved my life. After one year off work and a heart operation I was getting worse. In desperation a google search of my symptoms took me to the PAS to discover my symptoms were not a mystery. After self treatment and a further 7 months of recovery I restarted work. I am classed as a success story but have permanent damage which could have been easily avoided. I will always be thankful for the help.”

Mike Lynch

“In November 2014 and June 2016 the Pernicious Anaemia helped me to get my B12 injections reinstated, by providing advise and letters to give to my GP. After providing a letter in early December 2014 my GP reinstated my injections but then withdrew them again. The Pernicious Anaemia Society kindly provided a second letter which resulted in the injections being reinstated. I am very grateful to the Pernicious Anaemia Society for their support and I believe that without their support my injections would have been withdrawn.”

Sandra Denise Green

“It gave me my life back through information, education and links to others with long term experience. It continues to fight for GP recognition for this dreadfully under treated condition. It guided me safely through to self medicating. It without doubt has been a live saver for many.”

Susan Thorne

“Given me the confidence that comes from having expert, informed and impartial information. Knowing that the society is advocating for people with PA in all the important forums. Someone keeping an eye out for new developments in research and treatment.”

Jackie Carpenter

“From the knowledge gained from the society I was able to approach my GP to request more frequent injections, initially on a trial basis.
2. My GP admits she knows very little about the subject and I was able to direct her to the medical presentations of the researchers posted on the site which she found very useful. I am lucky in that she is willing to experiment and learn about pernicious anaemia.
3. I was able to approach a doctor at HO to find out if a physio could prescribe medication to me with my complaint.”

Ruth Brown