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PERNICIOUS ANAEMIA SOCIETY
Pernicious anaemia treatment during COVID-19
Pernicious Anaemia
B12 Deficiency and Pernicious Anaemia
The Chair's Blog
Healthcare Professionals
Latest News
Oral tablets to treat Pernicious Anaemia
We have been made aware that a pharmaceutical company based in Northumberland is about to be granted a licence to produce 1mg tablets of Cyanocobalamin. One of our Pharmacist...
Continuing: Treating Pernicious Anaemia during COVID-19
Different Guidelines on treating Pernicious Anaemia We are aware that too many Primary Care Practices have told patients that due to the current COVID-19 pandemic, patients’ B12...
BSH guidance on B12 during Covid-19 changed
The last two weeks have been a very testing time for the society. This is because various professional bodies have issued Guidelines to doctors and other health professionals on...
Statement on the current Covid-19 pandemic and treatment being stopped
This society is aware that the current Covid-19 pandemic is putting unprecedented demands on the NHS and that medical professionals at all levels are working hard…
Recent developments regarding injections being stopped
The problem of patients being told that they will not be receiving their injections due to the risk of spreading the Covid-19 virus has been the sole topic in telephone calls and...
Covid-19: Letter to Health Ministers and injections being stopped
In the last two days we have received over thirty telephone calls and many emails and comments from patients who have been told that their surgery is no longer providing...
Pernicious Anaemia and the Coronavirus
Last updated on March 20th, 2020 We have been contacted many times in the last week by members of the society who are concerned about their long-term condition and Covid-19. We...
Join or support us in the 2020 PAS Challenge events
Exciting sporting events for the PAS are well underway 2020 is an exciting year for PAS with regards to sporting events around the country and abroad. Our aim is to get PAS...
PAS Campaign: Meeting with the Welsh Government and what you can do
Last week, PAS chairman, Martyn Hooper MBE along with PAS office manager Karyl Carter met with the Chief Medical Officer for Wales, Dr. Frank Atherton, and members of the Welsh...
Did you know ?
%
Of patients waited 5 years or more for diagnosis
%
Of patients were initially misdiagnosed
%
Of patients are unhappy with their treatment
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With your help we can continue to do our valuable work, supporting those that need it and campaigning to secure future improvements in detection and treatment of this illness. The more members we have the bigger our voice will be in getting the way in which Pernicious Anaemia is diagnosed and treated thoroughly reviewed. Join us and help us bring about this much needed review. Your membership fee or donations go towards the running of society, but also help us to fund research projects, awareness campaigns and many other activities.
Find Out More
FAQ
What is Pernicious Anaemia ?
Pernicious means ‘ruinous, destructive and fatal’. Pernicious Anaemia was so named because it used to be fatal. It took doctors over 100 years from the disease first being identified to find a cure and a further twenty years to fully understand the condition.
People who have Pernicious Anaemia lack intrinsic factor and so cannot absorb B12 from food that has been eaten.
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What's the difference between B12 Deficiency and Pernicious Anaemia ?
Pernicious Anaemia is caused by either the patient not producing Intrinsic Factor that is needed to bind with vitamin B12 from food before it enters the blood stream or the Intrinsic Factor is being produced but is then destroyed by antibodies to the Intrinsic Factor – auto-immune Pernicious Anaemia. Because the patient is either not producing Intrinsic Factor or is destroying the Intrinsic Factor that has been produced the B12 cannot be absorbed from food.
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How do you get Pernicious Anaemia ?
If the test is positive, then it is 95% certain that the patient will have Pernicious Anaemia. However, it will identify only 50% – 70% of patients with the antibodies. So, if you test positive for the antibody you will almost certainly have Pernicious Anaemia. But is it is negative it does NOT rule our Pernicious Anaemia.
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How is Pernicious Anaemia treated ?
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