Research Study for Members: Investigating illness severity and health-related quality of life in patients diagnosed with Pernicious Anaemia
We received a telephone call yesterday from a very distraught member who was diagnosed with PA twenty-three years ago and has been having monthly injections since then. Yesterday she turned up for her monthly treatment only to be told that “new guidelines from NICE...
At the recent meeting of the South Wales Support Group Selena Walker gave a presentation on how she manages her PA using diet alone. Upon request we have uploaded her powerpoint presentation for members to view. The link can be found on the Member Homepage after...
For the second time in 7 months the offices of the society have been burgled. It happened sometime between 8:30am and 5:30pm last Friday (10th February). This time nothing was taken as we now lock away in a secure room any valuable equipment. Like last time, however,...
The Chairman of the Pernicious Anaemia Society, Martyn Hooper MBE has been invited to speak at the 11th International Conference on Homocysteine and One Carbon Metabolism that is being held at Aarhus University Hospital, Denmark between the 14th and 18th May 2017. The...
Member Support Groups are an excellent way to relieve the feeling of isolation that patients feel and they provide the opportunity to hear how others are dealing with their condition. If you would like to know more, log in and contact the co-ordinator of the group...
The Pernicious Anaemia Society
Level 4, Brackla House
Brackla Street, Bridgend
CF31 1BZ U.K.
+44 (0)1656 769 717
Did you know ?
Of patients waited 5 years or more for diagnosis
Of patients were initially misdiagnosed