Raising awareness and facilitating communication and research Bringing about change is the focus of the Pernicious Anaemia Society. To do this, the PAS liaises with outside agencies of various kinds to Raise Awareness of the problems faced by patients in getting a...
Following the Pernicious Anaemia James Lind Alliance Priority Setting Partnership (PSP) workshops, we now have our Top 10 Research Priorities; questions that patients, clinicians and other healthcare professionals agreed are the most important to be answered by...
After many months of work, the Pernicious Anaemia JLA PSP has reached the most important point in the partnership to date – the workshops. The aim of the workshops is for the attendees to agree the TOP TEN most important questions for research into Pernicious Anaemia....
We need your help to shape the future of Pernicious Anaemia research Last spring, we launched a survey where we asked you to tell us what questions relating to Pernicious Anaemia you would like answered. Over 1,300 patients, carers and healthcare professionals...
The James Lind Alliance Pernicious Anaemia Priority Setting Partnership, Steering Group and the survey - What's it all about? In recent weeks we’ve been asking you to complete our James Lind Alliance Pernicious Anaemia Priority Setting Partnership Survey. Now, that’s...
When the pandemic led to changes in patients’ treatment, we became aware that far too many patients were suffering harm because either their treatment was stopped, or they were told to find an alternative way to treat themselves. Despite ongoing research, there are...