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Active B12 Test News

Yesterday we met with the Laboratory Director of one of the Regional General Hospitals in Wales. The meeting was relating to one of the research programmes currently being conducted that the society is involved in. At the meeting, it was revealed that the hospital...

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Research help needed: Impact of illness on life of young people

One of the most common assumptions by health professionals and the general public is that Pernicious Anaemia is mainly found in the elderly. We know, however, that children and young adults are just as susceptible to develop the disease and we also know that it can...

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Opportunity to raise awareness: new NICE guidelines

Guidelines on Psychosis and Schizophrenia We have been busy responding to requests from NICE to give our view on Guidelines being produced by them. Today we were pleased to be able to comment on the Guidelines on Psychosis and Schizophrenia. These Guidelines are not...

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Leicester Support Group Meeting

Over the years, we have established contact with other charities that are patient support groups. We share information about contacts and strategies and generally collaborate to establish best practice and the relationships soon become mutually beneficial. A new...

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The impact of Prescription Charges

Yesterday we attended our first meeting of the Prescription Charges Coalition at the headquarters of the Parkinson’s UK. The meeting was a real insight into how the charges for prescriptions in England is impacting on the lives of patients with Long Term Conditions....

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Second Meeting with the British National Formulary

Two years ago, we had a meeting with the head of the British National Formulary (BNF). The BNF is the booklet that is produced by the Royal Pharmaceutical Society and the Royal Society of Medicine and tells doctors how to treat particular diseases. At that meeting we...

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The Meeting with NICE

We recently let you know that we would be having a meeting with the Director of Guidelines at the National Institute of Health and Care Excellence. The meeting lasted 45 minutes and it was reassuring to know that the Institute in general, and the Director and his...

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Well Done Rhona!

Gold Member Rhona Bell has successfully completed the 96-mile West Highland Way walking route – and she raised £675 for the Pernicious Anaemia Society. Rhona says, “I love the outdoors and have wanted to walk the West Highland Way since I was a teenager. When, out of...

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