NEWS & UPDATES
We’ve done it!
Today (17th October) we received an email from the Director of Guidelines at the National Institute for Health and Care Excellence (NICE). They have been formally requested by NHS England to produce a Guideline on the Diagnosis and Management of Pernicious Anaemia....
The Pernicious Anaemia Society welcomes new neurological patient experience survey
A new neurological patient experience survey is open, to collect vital information about the experiences of treatment and care, social care and welfare received by people affected by neurological conditions. The survey aims to collect enough data to positively...
Raising Awareness at the Cardiff Half-Marathon
“We couldn’t believe how many people came up to us and told them that either they, or someone they knew had Pernicious Anaemia”. That’s what the four runners in this year’s Cardiff Half Marathon told us after they successfully completed the course.
Running for the PAS
Virgin London Marathon In the summer we were lucky enough to be granted a Silver Bond entry to next year’s Virgin London Marathon. We have a waiting list of members of the society who want to enter this prestigious sporting event on behalf of our charity and top of...
Parliamentary Reception – We need your help!
We are delighted to tell you that we have been successful in our application to host a Parliamentary Reception in the Jubilee Room of the House of Commons on Thursday November 1st, 2018! We will be giving a presentation on the problems with the way in...
Research follow-up: Last Samples Delivered
Last Friday we delivered the 45 frozen Urine Samples to the laboratory in Milton Keynes as part of the research programme that is investigating why some patients need more frequent injections than others. The urine samples, which were transported in dry ice, are from...
Exploring symptom perception in Pernicious Anaemia : Research participants needed
* Update: this study is now closed. Thank you all very much who participated!* An opportunity for you to participate in an online study that focuses on exploring the symptoms of Pernicious Anaemia. Aim of the study To establish how (and if) physical and...
More good news! Another step forward in B12 research
We recently reported that the molecular analysis of the stool samples taken from those patients who need more frequent injections differed from those who manage perfectly well on one injection every three months. We also stated that the bacteria analysis was due any...
Surprise Findings by Research Team
The research programme investigating why some patients need more frequent injections of B12 than others is now coming to its conclusion. The faecal samples kindly provided by volunteer participants have been divided into three separate groups....