Pernicious Anaemia Society

Meeting with NICE on the Guideline

Meeting with NICE on the Guideline

This week we met with a representative from the National Institute for Health and Care Excellence (NICE). The meeting was very productive and positive as we made the case for NICE to produce a Guideline on the Diagnosis and Maintenance of Pernicious Anaemia. Although...

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Help us help you!

Help us help you!

Next Thursday (6th June) we will be attending the Pierhead Building in Cardiff Bay to tell Welsh Assembly Members about the problems we face getting diagnosed and treated. The event is being sponsored by Huw Irranca-Davies AM who is one of the AM’s representing the...

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Congratulations ‘Team Elise’

Congratulations ‘Team Elise’

After nine months of training Elise Dyer has completed the London Marathon held in late April. Elise, who is a member of the society and who lives in southwest France contacted us just after the 2018 London marathon and asked if we had any runners for the 2019 event....

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Restrictive treatment changed

Restrictive treatment changed

Yesterday we received confirmation from the British National Formulary (BNF) that they have changed their recommended treatment for Pernicious Anaemia without any neurological involvement. It’s only a small change but it’s a big step towards our final goal of getting...

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