Important Step Closer to New Guideline

After nearly four years of lobbying we have received an invitation to meet with Prof. Mark Baker, the Director of the Centre for Guidelines (CfG) at the National Institute for Health and Care Excellence (NICE). This invitation follows on from a request for NICE to...

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Report on the Conference in Denmark

The 11th International Conference on Homocysteine and One Carbon Metabolism that we were invited to speak at has now closed. See also the earlier news post about the conference here. The event, held over five days in Aarhus, Denmark, attracted over 200 delegates from...

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Treatment Is For Life – Leaflet

A new leaflet relating to the Treatment of Pernicious Anaemia is now available in the Library section of the website. It has been written for members to address two problems that we are dealing with on a daily basis. Firstly, it addresses the dangerous and all too...

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The Annual General Meeting

The Annual General Meeting of the Pernicious Anaemia Society will be taking place at the Burlington Hotel in Birmingham at 10:30 on Saturday 3rd June, 2017. The AGM is held annually and, like most other charities, only the Trustees will be taking part. This is because...

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Let’s Get Together

We are starting to plan three Regional Get-Togethers that will take place in the Autumn. These informal gatherings will be held in London, Leeds and Edinburgh towards the end of the summer and will provide the opportunity for members to meet other members and exchange...

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New Research Project – Diet and Autoimmune Diseases

You may remember that we reported an interesting research project that was in the very first stages of development. Well, we’ve just been told that the two researchers who we met with in London have been successful in their application for funding and the research...

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Thank You to our Regular Donators

Last year we asked all of our members to consider making a small but regular monthly donation to the society in order to help us to meet the increasing demands made for our services. We want to say a great big Thank You to the members who responded to our request and...

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International B12 Conference Programme Announced

The full conference programme for the conference on One-Carbon Metabolism and Homocysteine has now been confirmed and the Chairman of the society, Martyn Hooper MBE, who has been invited to give the patient’s perspective on how the problems with the diagnosing and...

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A new opportunity to participate in a research project

Here’s a new opportunity to participate in a new research project that is looking at the experiences of receiving a diagnosis of Pernicious Anaemia. This new project will look at the experience of patients in getting diagnosed and treated, and how health professionals...

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