NEWS & UPDATES

A new opportunity to participate in a research project

Here’s a new opportunity to participate in a new research project that is looking at the experiences of receiving a diagnosis of Pernicious Anaemia. This new project will look at the experience of patients in getting diagnosed and treated, and how health professionals...

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Rhona’s Walking the West Highland Way

Good Luck to Gold Member Rhona Bell who is walking the 154.5 km (96.0 mi) long West Highland Way – and she’s doing it for the Pernicious Anaemia Society. The long-distance route runs from Milngavie north of Glasgow to Fort William in the Scottish Highlands and Rhona...

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Here We Go Again!

We received a telephone call yesterday from a very distraught member who was diagnosed with PA twenty-three years ago and has been having monthly injections since then. Yesterday she turned up for her monthly treatment only to be told that “new guidelines from NICE...

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Diet and Pernicious Anaemia

At the recent meeting of the South Wales Support Group Selena Walker gave a presentation on how she manages her PA using diet alone. Upon request we have uploaded her powerpoint presentation for members to view. The link can be found on the Member Homepage after...

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We’ve been burgled again

For the second time in 7 months the offices of the society have been burgled. It happened sometime between 8:30am and 5:30pm last Friday (10th February). This time nothing was taken as we now lock away in a secure room any valuable equipment. Like last time, however,...

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Support Group News

Member Support Groups are an excellent way to relieve the feeling of isolation that patients feel and they provide the opportunity to hear how others are dealing with their condition. If you would like to know more, log in and contact the co-ordinator of the group...

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Autoimmune Diseases & Diet

We’ve been contacted by a newly formed research team who are investigating whether changes to diet can be used to alleviate the symptoms of auto-immune diseases. The research team want to know if patients diagnosed with Pernicious Anaemia have any anecdotal evidence...

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The New Documentary

We’ve started to write the new documentary that will raise awareness of the problems with the Diagnosis and Treatment of Pernicious Anaemia. It was in 2011 that our first documentary, ‘Living with the Fog’ was produced and although it was well received we didn’t have...

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