A new study published in the Journal of Rare Diseases shines a much-needed light on the lived experience of Pernicious Anaemia (PA). For many in our community, the findings won't come as a surprise, but they provide vital academic validation for the daily struggles we...
This month’s blog post is from Nicola Chantler, Head of Communications at the Wren Project. Here she shares the difficulties of not being listened to when living with a chronic disease, in an interview with founder Kate MiddletonMany people living with autoimmune...
This month’s blog is written by a Dentist. Recently several of our members mentioned that they had a more positive experience talking with their dentist about their PA than their GP. It reflected our CEO’s own experience who asked her dentist to give his perspective...
A recent publication in the British Medical Journal posed the question “Do high vitamin B12 levels in children matter?
Whilst this paper is not available to the general public our valued colleagues in CluB-12 spotted the important points missed in this paper and filed a rapid response.
This month’s blog post is from our Chief Executive Officer, Katrina Burchell, who, as a patient, often experiences the same less than perfect treatment for Pernicious Anaemia that our members encounter. Here she gives her perspective on a particular frustration about...
Vitamin B12 deficiency is diagnosed on the basis of blood tests. First, the doctor will have to suspect B12 deficiency as a possible cause of the patient’s symptoms, combined with their risk factors.