Petra

Why, what, how: the JLA PA Priority Setting Partnership

Why, what, how: the JLA PA Priority Setting Partnership

The James Lind Alliance Pernicious Anaemia Priority Setting Partnership, Steering Group and the survey - What's it all about? In recent weeks we’ve been asking you to complete our James Lind Alliance Pernicious Anaemia Priority Setting Partnership Survey. Now, that’s...

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Have Your Say On PA

Have Your Say On PA

When the pandemic led to changes in patients’ treatment, we became aware that far too many patients were suffering harm because either their treatment was stopped, or they were told to find an alternative way to treat themselves. Despite ongoing research, there are...

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Long COVID and Pernicious Anaemia

Long COVID and Pernicious Anaemia

Last Updated: 21 February 2021: You may remember that last month we wrote to the Chief Medical Officers in the UK to point out that the symptoms of Long-Covid were remarkably similar to those of Vitamin B12 Deficiency and that..

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Treatment concerns during COVID-19? Let NHSE know

Treatment concerns during COVID-19? Let NHSE know

So, the clocks went back an hour last week, which means, we suppose, that we get an extra hour of 2020; another hour on a year that has been like no other than we can remember. For far too many patients who have Pernicious Anaemia the Covid-19 pandemic has brought...

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