Dedicated Helpline Telephone Number My thanks to those who have volunteered to help man the telephone helpline service that we offer to our members. We receive a lot of calls from non-members asking for help and advice and, although we do our best to help these...
Well, I promised you in my report in the last newsletter that I would keep you all better informed of what I’ve been up to and so, here we are, in the third week of the new year and I’m keeping up with my New Year’s Resolution and sitting here writing about what has...
“We couldn’t believe how many people came up to us and told them that either they, or someone they knew had Pernicious Anaemia”. That’s what the four runners in this year’s Cardiff Half Marathon told us after they successfully completed the course.
We know that there are serious failures concerning the tests used to diagnose Pernicious Anaemia. And we also know that patients face a long journey before they are eventually told the reasons for their symptoms – 33% waited over ten years before being diagnosed....
We recently let you know that we would be having a meeting with the Director of Guidelines at the National Institute of Health and Care Excellence. The meeting lasted 45 minutes and it was reassuring to know that the Institute in general, and the Director and his...
After nearly four years of lobbying we have received an invitation to meet with Prof. Mark Baker, the Director of the Centre for Guidelines (CfG) at the National Institute for Health and Care Excellence (NICE). This invitation follows on from a request for NICE to...