We need your help to shape the future of Pernicious Anaemia research Last spring, we launched a survey where we asked you to tell us what questions relating to Pernicious Anaemia you would like answered. Over 1,300 patients, carers and healthcare professionals...
The James Lind Alliance Pernicious Anaemia Priority Setting Partnership, Steering Group and the survey - What's it all about? In recent weeks we’ve been asking you to complete our James Lind Alliance Pernicious Anaemia Priority Setting Partnership Survey. Now, that’s...
When the pandemic led to changes in patients’ treatment, we became aware that far too many patients were suffering harm because either their treatment was stopped, or they were told to find an alternative way to treat themselves. Despite ongoing research, there are...
Last Updated: 21 February 2021: You may remember that last month we wrote to the Chief Medical Officers in the UK to point out that the symptoms of Long-Covid were remarkably similar to those of Vitamin B12 Deficiency and that..
So, the clocks went back an hour last week, which means, we suppose, that we get an extra hour of 2020; another hour on a year that has been like no other than we can remember. For far too many patients who have Pernicious Anaemia the Covid-19 pandemic has brought...
After four years of working with the National Institute for Health and Care Excellence (NICE) we are delighted to announce that a Guideline on the Diagnosis and Maintenance of Pernicious Anaemia was commissioned by the institution in August of this year. This is a...