We’ve started to write the new documentary that will raise awareness of the problems with the Diagnosis and Treatment of Pernicious Anaemia. It was in 2011 that our first documentary, ‘Living with the Fog’ was produced and although it was well received we didn’t have the evidence at that time that there are serious problems that patients face in getting a diagnosis and receiving adequate treatment that we have access to now. Now, the amount of evidence relating to the disease means that this new documentary will be much more than just anecdotal stories, it will feature interviews with medical professionals and other scientists that will show that the way in which the condition is diagnosed and treated needs to be thoroughly reviewed. And we’ll be interviewing members who have interesting stories to tell (more about that later).
And, in addition to looking at the problems relating to diagnosing and treating the disease, there will also be a section that reports on how Pernicious Anaemia impacts on the everyday lives of sufferers. We’ve been busy working with Psychologists and other interested professionals to investigate just how PA affects patients Family Life, Social Life, Working Life, and Education. In addition, it will also report on how the Healthcare systems around the world are also being affected, not only in financial terms due to misdiagnosis, but also in doctors not ‘looking’ for the disease.
Now, why are we telling you this? Because we want suggestions for the title of the film.
It is going to be a well-balanced and serious investigation and so ‘sensational’ titles would not be suitable. Nor will the film be an angry investigation; it has to be balanced otherwise it just becomes a polemic which will not be treated as a serious piece of work. It will be a calm investigation that relates facts as they are in a non-sensational way. And we need a title that reflects this.
Please let us have your suggestions by writing a comment below this post. If we choose the title from one of the suggestions the winning entry will get a signed copy of Martyn Hooper’s latest book and will be invited to the premiere of the film.
Please remember, no sensationalism!
Best of luck.
Seeing through the fog
Purple Haze
The Trouble With Cobalamin
A Patient’s Perspective on B12
A Pernicious Problem
Reflection of my Shadow
Patient experience before during and after diagnosis . Feelings that come before reflection . Patient experience under used tool xx Goodluck with documentary
Just like a game of Blind Man’s Buff without the fun
Per what ??
Why had I not heard of pernicious anemia before diagnosis ?
A day and life living with Pernicious Anaemia – the silent but progressive illness….
The unspoken truth
The Deadly deficiency
The God Vitamin
and the forgotten disease
The forgotten people inside the mind of pernicious anaemia sufferers
A New Approach To Diagnosing And Treating Pernicious Anemia
Intrinsically Flawed
Disguised Diagnoses
Or, a play on words, ‘Intrinsically Floored’
Pernicious Anaemia: The Facts YOU need to know
The missing pieces – vitamin deficiencies & P.A. uncovered
Finding balance.
Pernicious,Falling on deaf ears.
The daily struggles and tales of pernicious anaemia!
Everybody’s story
B12 Aware:
Expelling the myths around pernicious anaemia
Just One of Many
We need a whole host of vitamins and minerals to make our bodies function properly.
There are many symptoms, not just one or two.
many go undiagnosed, misdiagnosed or under treated.
Are you one of the many?
A sufferer of B12 deficiency
Pernicious Anaemia: The Silent Killer With A Costly Sigh
I second the above suggestions:
1) A Pernicious Problem [Jennifer Warr]
2) The Deadly Deficiency [Jenny Usher]
3) B12 Aware – Intrinsically Flawed [Maggie/Helen Bates combination]
B12 No profit. No Research, No treatment – WHY ?
B12 matters:
Exploring the facts around pernicious anaemia
B12-Be aware
or
Misdiagnosed? #Perniscious anaemia
Knowing Pernicious Anemia
Pernicious Anemia’s – RED MIST (Realizing
Everyone’s
Different
Mis(and under) diagnosed
Indiviual’s
Silent
Torture
B12 – Don’t ignore it because it won’t go away
Life Blood – the debilitating effects of Pernicious Anaemia
You can ‘Be One Two’ or ‘You can Be One Two as well’
“The Silent Killer: Pernicious Anaemia”
Also, I’d like to know when this documentary will be released.
To B12 or not to B12, that is the question.
PA and me