There is another area of inequality in healthcare is for those with long-term and chronic conditions, where there is a lack of awareness, education and research available to the health care profession.
The Pernicious Anaemia Society is the charity which originally petitioned for a NICE guideline on Pernicious Anaemia, and we are disappointed that during the formation of the NICE Committee and in the early meetings, the focus moved to a more general NICE guideline on B12 deficiency as a symptom and not Pernicious Anaemia as a condition.
Dr Joseph Alexander "Chandy" Kayyalackom (1941-2023) -a ReflectionThe end of 2023 bought the sad news of the passing of Dr Chandy, a well-known name to those of us involved in the world of B12 deficiency and our blog post schedule for January has been changed to a...
You will note immediately that I have done two things in the title, 1) to use the word 'one' rather than 'a' or 'the'. I make no pretence that this article is a definitive history of this condition and 2) I have used the UK spelling of anaemia throughout, knowing that...
After many months of work, the Pernicious Anaemia JLA PSP has reached the most important point in the partnership to date – the workshops. The aim of the workshops is for the attendees to agree the TOP TEN most important questions for research into Pernicious Anaemia....
We need your help to shape the future of Pernicious Anaemia research Last spring, we launched a survey where we asked you to tell us what questions relating to Pernicious Anaemia you would like answered. Over 1,300 patients, carers and healthcare professionals...