One of the most common assumptions by health professionals and the general public is that Pernicious Anaemia is mainly found in the elderly. We know, however, that children and young adults are just as susceptible to develop the disease and we also know that it can...
Guidelines on Psychosis and Schizophrenia We have been busy responding to requests from NICE to give our view on Guidelines being produced by them. Today we were pleased to be able to comment on the Guidelines on Psychosis and Schizophrenia. These Guidelines are not...
Over the years, we have established contact with other charities that are patient support groups. We share information about contacts and strategies and generally collaborate to establish best practice and the relationships soon become mutually beneficial. A new...
We know that there are serious failures concerning the tests used to diagnose Pernicious Anaemia. And we also know that patients face a long journey before they are eventually told the reasons for their symptoms – 33% waited over ten years before being diagnosed....
Yesterday we attended our first meeting of the Prescription Charges Coalition at the headquarters of the Parkinson’s UK. The meeting was a real insight into how the charges for prescriptions in England is impacting on the lives of patients with Long Term Conditions....
Two years ago, we had a meeting with the head of the British National Formulary (BNF). The BNF is the booklet that is produced by the Royal Pharmaceutical Society and the Royal Society of Medicine and tells doctors how to treat particular diseases. At that meeting we...