NICE Request

The Chairman of the Pernicious Anaemia Society has been contacted by the Director of Guidelines for the National Institute for Health and Care Excellent (NICE) and asked to complete a Template for a Topic Selection Pre-Referral Briefing. This is the first stage in...

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Help improve the diagnosis

We know that there are serious problems with the diagnosis of Vitamin B12 Deficiency in general and Pernicious Anaemia in particular. And the new Guidelines from the British Committee for Standards in Haematology acknowledge these shortcomings and point out that the...

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Appeal Tribunal

Personal Independence Payment (PIP) The Benefits System in the UK underwent a major change in recent years with the Personal Independence Payment (PIP) replacing the Disability Living Allowance. Those who used to receive, or still receive the Disability Living...

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Active B12 Test News

Yesterday we met with the Laboratory Director of one of the Regional General Hospitals in Wales. The meeting was relating to one of the research programmes currently being conducted that the society is involved in. At the meeting, it was revealed that the hospital...

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Research help needed: Impact of illness on life of young people

One of the most common assumptions by health professionals and the general public is that Pernicious Anaemia is mainly found in the elderly. We know, however, that children and young adults are just as susceptible to develop the disease and we also know that it can...

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Opportunity to raise awareness: new NICE guidelines

Guidelines on Psychosis and Schizophrenia We have been busy responding to requests from NICE to give our view on Guidelines being produced by them. Today we were pleased to be able to comment on the Guidelines on Psychosis and Schizophrenia. These Guidelines are not...

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Leicester Support Group Meeting

Over the years, we have established contact with other charities that are patient support groups. We share information about contacts and strategies and generally collaborate to establish best practice and the relationships soon become mutually beneficial. A new...

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The impact of Prescription Charges

Yesterday we attended our first meeting of the Prescription Charges Coalition at the headquarters of the Parkinson’s UK. The meeting was a real insight into how the charges for prescriptions in England is impacting on the lives of patients with Long Term Conditions....

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