We’ve been contacted by a newly formed research team who are investigating whether changes to diet can be used to alleviate the symptoms of auto-immune diseases. The research team want to know if patients diagnosed with Pernicious Anaemia have any anecdotal evidence...
We are looking for members of the Pernicious Anaemia Society who cannot manage on the twelve weekly treatment regime that is used to treat PA in the UK. If you live in the south of England, especially in Hampshire, Dorset or the Isle of Wight and would be willing to...
Here's a request from a Journalist: "Do you have a man or woman aged 40-70 who will tell me their story in detail, with a positive outcome (they now have the treatment they need) and who can also supply a good head and shoulders pic for use in the magazine?" Please...
Here's another Request from NICE: Dear Colleague RE: NICE committee to develop guidelines on the assessment, diagnosis and referral of neurological problems. I am writing to tell you that we are recruiting members for one of our guideline...
If you have an interesting story about the problems you faced in getting an accurate diagnosis and adequate treatment and are prepared to speak to a journalist about this please get in touch. Use the 'info' email address - info"at"pasoc.org.uk (replace "at" with the@...