Pernicious Anaemia

Meeting with NICE on the Guideline

Meeting with NICE on the Guideline

This week we met with a representative from the National Institute for Health and Care Excellence (NICE). The meeting was very productive and positive as we made the case for NICE to produce a Guideline on the Diagnosis and Maintenance of Pernicious Anaemia. Although...

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Help us help you!

Help us help you!

Next Thursday (6th June) we will be attending the Pierhead Building in Cardiff Bay to tell Welsh Assembly Members about the problems we face getting diagnosed and treated. The event is being sponsored by Huw Irranca-Davies AM who is one of the AM’s representing the...

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Restrictive treatment changed

Restrictive treatment changed

Yesterday we received confirmation from the British National Formulary (BNF) that they have changed their recommended treatment for Pernicious Anaemia without any neurological involvement. It’s only a small change but it’s a big step towards our final goal of getting...

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We’ve done it!

We’ve done it!

NICE Guideline on the Diagnosis and Management of Pernicious Anaemia Today (17th October) we received an email from the Director of Guidelines at the National Institute for Health and Care Excellence (NICE). They have been formally requested by NHS England to produce...

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