The project is independently overseen by the James Lind Alliance (JLA), a non-profit making initiative, which is hosted by the National Institute of Health Research (NIHR). Its aim is to bring patients, carers and health care professionals together to identify and prioritise research questions in order to influence the direction of future research in that area.
The Steering Group
The project is managed by a Steering Group, led by an independent chair from the JLA. The Steering Group includes patient/parent representatives as well as professionals and representatives from charities supporting children with cancer. The role of the Steering Group is to manage the PSP, ensuring that it is delivered in a timely way and adheres to the JLA’s key principles of transparency, inclusion/exclusion, equality of voice and use of the existing evidence base. The Steering Group will ensure that the process from the initial survey to the identification of the top 10 priorities is documented, open and transparent and entirely determined by the responses received from patients, carers and professionals and the review of the existing evidence base.
Martyn Hooper MBE
Martyn Hooper is the Executive Chair of the Pernicious Anaemia.