Complete the Survey

Have your say on Pernicious Anaemia Research

We want identify problems relating to Pernicious Anaemia that need to be addressed by researchers. And we need your help to do this.
We would like you to take a survey that has been specially designed to identify research questions that are important to you.

Background

We are working with an initiative called the James Lind Alliance that was set up to bring together patients, carers and clinicians. So, whether you are a patient with Pernicious Anaemia, a carer for someone with Pernicious Anaemia, or a clinician with an interest in some aspect of Pernicious Anaemia we want to hear from you.

What will the survey achieve?

We will use your responses to the survey questions to identify questions that need to be researched thoroughly. These questions can relate to either the way in which Pernicious Anaemia is diagnosed or treated – or both. By bringing together patients and doctors this survey will ensure that the research topics are the result of a collaborative discussion involving as many people as possible with an interest in Pernicious Anaemia.

Who can take part in the survey?

The only requirement is that you currently live in the UK. If you suspect you have Pernicious Anaemia but have not had a firm diagnosis, you may still complete this survey.

The survey should take about ten minutes to complete but you can take as long as you need. Many thanks for taking the time to complete this survey.

If you have any queries, please do not hesitate to contact us: psp@pasoc.org.uk

The survey is now closed

A big thank you to everyone who participated! We have received an incredible number of responses. Your support is greatly appreciated!

The PSP will now sort all the responses and create summary questions which will become a long list of summary questions. You can read more about the next steps of the process here.

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