The research programme investigating why some patients need more frequent injections of B12 than others is now coming to its conclusion. The faecal samples kindly provided by volunteer participants have been divided into three separate groups....
Here’s a new opportunity to participate in a new research study exploring what it’s like to live and cope with Pernicious Anaemia. The research aims to explore the coping strategies of managing pernicious anaemia through the lived experiences of those diagnosed. The...
We’ve been contacted by a journalist working for a National Newspaper in the UK who is looking for someone who had itchy skin as one of their symptoms of Pernicious Anaemia. Here’s what she says: “I am looking for a case study of a person with pernicious anaemia for...
You may remember that last September we told you about a PhD student who was looking at how long-term conditions like Pernicious Anaemia affects those who are in education, either full or part-time. Members were invited to contact the student to tell of how, and to...
We know that there are serious problems with the diagnosis of Vitamin B12 Deficiency in general and Pernicious Anaemia in particular. And the new Guidelines from the British Committee for Standards in Haematology acknowledge these shortcomings and point out that the...
The Pernicious Anaemia Society
Level 4, Brackla House
Brackla Street, Bridgend
CF31 1BZ U.K.
+44 (0)1656 769 717
Did you know ?
Of patients waited 5 years or more for diagnosis
Of patients were initially misdiagnosed