This week we met with a representative from the National Institute for Health and Care Excellence (NICE). The meeting was very productive and positive as we made the case for NICE to produce a Guideline on the Diagnosis and Maintenance of Pernicious Anaemia. Although...
Yesterday we received confirmation from the British National Formulary (BNF) that they have changed their recommended treatment for Pernicious Anaemia without any neurological involvement. It’s only a small change but it’s a big step towards our final goal of getting...
NICE Guideline on the Diagnosis and Management of Pernicious Anaemia Today (17th October) we received an email from the Director of Guidelines at the National Institute for Health and Care Excellence (NICE). They have been formally requested by NHS England to produce...
We are delighted to tell you that we have been successful in our application to host a Parliamentary Reception in the Jubilee Room of the House of Commons on Thursday November 1st, 2018! We will be giving a presentation on the problems with the way in which Pernicious...
We are sponsoring 20 year-old Laura Smith from Grimsby who is hoping to be crowned the new ‘Miss Yorkshire‘ at the Double Tree Hilton in Sheffield on Saturday 17th June. If she is successful she will then be entering the Miss England competition. Laura is a member of...
You may remember that last September we told you about a PhD student who was looking at how long-term conditions like Pernicious Anaemia affects those who are in education, either full or part-time. Members were invited to contact the student to tell of how, and to...