PAS Conference 2019: Treating Pernicious Anaemia – Getting it Right

The most common complaint received by the Pernicious Anaemia Society relates to the treatment of the disease. It is time for the ‘one-size-fits-all’ treatment to be reappraised. This PAS conference will highlight the Good, Poor and Unacceptable...

Meeting with NICE on the Guideline

This week we met with a representative from the National Institute for Health and Care Excellence (NICE). The meeting was very productive and positive as we made the case for NICE to produce a Guideline on the Diagnosis and Maintenance of Pernicious...

Help us help you!

Next Thursday (6th June) we will be attending the Pierhead Building in Cardiff Bay to tell Welsh Assembly Members about the problems we face getting diagnosed and treated. The event is being sponsored by Huw Irranca-Davies AM who is one of the AM’s...

Wall Street Journal Identifies Problems with B12 Deficiency

PHOTO: ABBIE TRAYLER-SMITH FOR THE WALL STREET JOURNAL On Tuesday 30th April, the prestigious Wall Street Journal published an article written by Dana Hawkins-Simons. Dana is most likely a sufferer of Pernicious Anaemia and, like so many of us, waited years...

Congratulations ‘Team Elise’

After nine months of training Elise Dyer has completed the London Marathon held in late April. Elise, who is a member of the society and who lives in southwest France contacted us just after the 2018 London marathon and asked if we had any runners for the...

BECOME A MEMBER OF THE PERNICIOUS ANAEMIA SOCIETY

With your help we can continue to do our valuable work, supporting those that need it and campaigning to secure future improvements in detection and treatment of this illness. The more members we have the bigger our voice will be in getting the way in which Pernicious Anaemia is diagnosed and treated thoroughly reviewed. Join us and help us bring about this much needed review.
Meeting with NICE on the Guideline

Meeting with NICE on the Guideline

This week we met with a representative from the National Institute for Health and Care Excellence (NICE). The meeting was very productive and positive as we made the case for NICE to produce a Guideline on the Diagnosis and Maintenance of Pernicious Anaemia. Although...

read more
Help us help you!

Help us help you!

Next Thursday (6th June) we will be attending the Pierhead Building in Cardiff Bay to tell Welsh Assembly Members about the problems we face getting diagnosed and treated. The event is being sponsored by Huw Irranca-Davies AM who is one of the AM’s representing the...

read more
Restrictive treatment changed

Restrictive treatment changed

Yesterday we received confirmation from the British National Formulary (BNF) that they have changed their recommended treatment for Pernicious Anaemia without any neurological involvement. It’s only a small change but it’s a big step towards our final goal of getting...

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We’ve done it!

We’ve done it!

Today (17th October) we received an email from the Director of Guidelines at the National Institute for Health and Care Excellence (NICE). They have been formally requested by NHS England to produce a Guideline on the Diagnosis and Management of Pernicious Anaemia....

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Running for the PAS

Running for the PAS

Virgin London Marathon In the summer we were lucky enough to be granted a Silver Bond entry to next year’s Virgin London Marathon. We have a waiting list of members of the society who want to enter this prestigious sporting event on behalf of our charity and top of...

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Did you know ?

%

Of patients waited 5 years or more for diagnosis

%

Of patients were initially misdiagnosed

%

Of patients are unhappy with their treatment

Find Out More

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Do come along and join us, and other other members of the society for a chance to share your experience of living with Pernicious Anaemia in a supportive and friendly environment.

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