Pernicious Anaemia Society

anotherwithpa · Posted: Mon Dec 07, 2009 2:36 pm Post subject:

Every time I read up something new has been added, this clearly implies its up to the GP to decide how frequent and for how long a person has their B12 injections (it also clearly states coming to the surgery though for the jab), see:

http://www.cks.nhs.uk/anaemia_b12_and_folate_deficiency#313976003

Anaemia - vitamin B12 and folate deficiency - Management
View all prescribing information

What advice should I give to people about vitamin B12?

The dosage depends on the specific illness and how much the condition improves once treatment has started. When the condition has improved sufficiently, the dose will be reduced, although some people will require regular injections for the rest of their lives.
Advise the person that:

They will need to return to their health care professional for the intramuscular injections. The frequency of this will depend on the prescribed dose.

Their blood will need to be monitored regularly.

If they have cardiovascular disease, then their blood potassium levels in particular will need to be monitored at the start of treatment.

[ABPI Medicines Compendium, 2005]
_________________
I'm no medic, just have PA and can only try to understand, offer support and learn from my own and other's experiences.

anotherwithpa · Posted: Mon Dec 07, 2009 3:04 pm Post subject:

Lots of info on B12,see:
EXPERT GROUP ON VITAMINS AND MINERALS
REVISED REVIEW OF VITAMIN B12

http://www.food.gov.uk/multimedia/pdfs/EVM0020P.pdf
_________________
I'm no medic, just have PA and can only try to understand, offer support and learn from my own and other's experiences.

AndreaM · Posted: Wed Dec 23, 2009 3:42 pm Post subject:

Excellent and very informative article which is well worth reading:

http://www.westonaprice.org/Vitamin-B12-Vital-Nutrient-for-Good-Health.html

Andrea

AndreaM · Posted: Sun Jan 10, 2010 3:11 pm Post subject:

An article which would be good to give to stubborn doctors who think they know everything there is to know about PA:

http://insidesurgery.com/tag/vitamin-b12/

It looks like there's a mistake with the dose (should be 1000mcg rather than 100mcg) but it does say maintenance injections should be monthly.

Andrea

AndreaM · Posted: Wed Feb 24, 2010 5:42 pm Post subject:

B12 information and an interesting and detailed list of specific symptoms:

http://www.fredericpatenaude.com/blog/?p=379

Andrea

Galixie · Joined: 08 Dec 2009 Posts: 65 Location: Seattle, USA

You guys are so good at finding info about PA that you probably have already got a link to this excerpt from a 2005 book. But just in case, I thought I'd add it:

http://www.wrongdiagnosis.com/p/pernicious_anemia/book-diseases-7e.htm

I thought this part was interesting because I haven't seen any other medical articles state this: